Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
Donate to VBF    Find a Doctorbefore and after photos
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.


Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.


Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.


Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.


Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.


Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.


Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.


Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.


Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!


Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.


Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.


Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.


Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.


Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.


Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.


Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.


Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.


Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.


Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.


Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.


Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.


Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.


Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.


Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.


Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.


Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.


Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.


Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (, your questions about make-up.


Eileen O'Connor, Adult Living with PWS


Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from will answer makeup related concerns.


Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.


Dr. Thomas Serena, Wound Care Expert


Sarina Patel, Young Adult Advocate



What Our Families Are Saying About Us


"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.


Hope For Families Dealing With Lymphatic Malformations

I am finally getting around to updating everyone and thanking you all for helping Cody and us through his operation. I can not say enough wonderful things about the many professionals and friends who have assisted us in this process. Having to allow your six year old child to be anesthetized and operated on is hard enough with out being concerned about whether you are in the right place and if you will be able to afford it. I thank the Lord that I have good medical insurance, and my heart goes out to those who do not.


I would like to brief you all on our year of determination in an attempt to thank those who have helped us, and to inform other families with birthmarks of medical professionals and lay people who could help them.


In March of 2004 we were at our wits end and confused. Cody, my 5 year old son, had a birthmark that had become bloody on his right hand. I happened upon a very dedicated Linda Shannon via the Vascular Birthmarks Foundation's website, Linda made time to see us and became instrumental in assisting us to get the medical attention we desperately needed for Cody. Linda and Dr. Martin Mihms arranged for us to attend a VBF clinic, where Dr. Miton Waner and a host of doctors from Massachusetts General Hospital were able to review Cody's condition and recommed a course of treatment. It was decided that the best specialist to remove Cody's Lymphatic Malformation would be Dr. Joseph Upton in Massachusetts.


At this time I would like to seriously thank all those medical professionals and laypeople that assisted us in our quest to go to Boston Children's Hospital.


THANK YOU.......
Dr Mihm, Linda Shannon, and Dr. Waner for the many wonderful hours you all put in to providing those monthly VBF clinics to those of us who need the answers to our many questions.


Dr James Saperstone and his entire office of very patient professionals at Guilderland Pediatrics, that took my many calls, sent referrals and helped us get to Boston for the surgery.


Dr. Edwin Williams and his caring staff that took my call the day Cody's hand kept bleeding, made time to see us and found us a local plastic surgeon that specializes in hand surgery.


Dr. Jerome Chao, of Albany Plastic Surgeons, who evaluated Cody's condition and assisted us in our quest to have Dr Upton perform the surgery in Boston. Dr. Chao not only helped us get to see Dr. Upton, but followed up with us once arrangements were made to have the surgery in Boston.


Dr. Joseph Upton, his staff and the staff at Boston's Children's Hospital for all of their help and attentive care for Cody and our family.


Capital District Physician's Health Plan for changing their original determination of "Out of Network" to "In Network" coverage that allowed us to have the proceedure done in Boston.


Cody's hand beforeAs you can see by the before and after photos, Cody's hand is healing quite nicely. It is amazing the changes we see in Cody. And yes, Cody can now wear a baseball glove on his right hand and throw left handed.


Cody's hand after surgeryThank you all for your prayers and patience. Thank you again for the wonderful and generous donations you made to the VBF in 2004. Once again, May 15, 2005 has been designated Vascular Birthmark Awareness Day. As I count my blessings for all the good things that have happened since I first discovered the VBF, I am reminded of the faces of the other families that attended the clinic with us in August. I remember, thinking then that some of them would not have had the resources to have gotten to see Dr. Waner with out those clinics. I also think of people who have never heard of the VBF and are experiencing the same heartache and confusion we faced last March.


It is my hope that the contents of this letter reaches them somehow and they, also can be helped by the VBF. I will again be accepting donations for this much needed foundation to stay alive. Those of you that would like to donate directly to the VBF, can visit their website and donate accordingly. Feel free to tell them Cody Chase sent you.


Thank you again and God bless you,
Lianne, Kevin Cody and Casey Chase