Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
VBF logo
1994 - 2016
100,000 BIRTHMARKS
100,000 LIVES GIVEN NEW HOPE
Dr. Linda Rozell-Shannon, PhD President and Founder
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VBF Board and Staff

Board of Directors (voting)

 

 

CorinneVBF Director of Family Services
Corinne Barinaga
Corinne has a B.A. in Communications and Advertising. She lives in the Seattle, Washington area with her husband and their four boys. Their son, Nicholas, had a large segmental hemangioma. Corinne's quest to learn about her son's condition resulted in her becoming the manager of the MSN Vascular Birthmarks Support Group. She is a staunch advocate for parents. Her mission is to educate the public and physicians about the latest information concerning the diagnosis and management of vascular birthmarks. She is available to answer your questions and direct you to the appropriate physician and resources. Corinne is dedicated to working with families on an individual basis to address their specific needs.

 

 

President
Jeffery Bergen, MSN, RN
Jeff Bergen is a former Navy Corpsman who completed 8 years of active service and was honorably discharged. After the Navy he went to nursing school and later went on to attain a Master’s Degree in Nursing. As a Registered Nurse, he has worked in infectious disease and oncology nursing, and was a hospital epidemiology nurse. He is certified in infection control and health care quality. He is currently the manager of the Office of Licensure, Accreditation & Regulation at Cedars-Sinai Medical Center in Los Angeles, CA. He is also pursuing his PhD in Nursing through The Catholic University of America. Jeff is an established patient at the Beckman Laser Institute where receives treatment for his portwine stain.

 

 

Vice President, Parent Rep
Brian Bolinger
Brian A. Bolinger has been a member of the Board of Directors for the Vascular Birthmarks Foundation since 2006. Mr. Bolinger is currently the President of Bolinger Consulting, where he assists companies with strategic planning, implementation, business model development, team building and customer growth.  His wife, Natalie, is also a board member.


 

 
Parent Rep
Natalie Bolinger
Natalie became involved with the foundation after the Bolinger's daughter Nicole “Coco” was born with a compound cheek hemangioma in 2003. Through the foundation, the Bolingers were networked to a physician who, through a series of six surgeries, completely removed both of Nicole’s hemangiomas. Brian and Natalie started the Angel’s Kiss Gala in 2003 to raise awareness and funds for the Vascular Birthmarks Foundation.

 

 

Parent Rep
Lianne Chase

 

 

 

 

 

 


Parent Rep
Dinah Gonzalez, MD
 

 

 

 

 

 

 

Parent Rep
Marvin Kalafer, MD

 

 

 

 

 

 

Parent Rep
Andria Gottasbend

 

 

 

 

 

 

Director of International Chapters and SWSC Director 
Glenda Ethington
Glenda Ethington is cofounder of the Sturge-Weber Syndrome Community, a worldwide organization for individuals and families living with Sturge-Weber syndrome (SWS.) Her grandson, Glen, has SWS and she was inspired by his courage to form an Internet support group for SWS, which eventually led to the SWSC chapter membership into the VBF. She has a background in print journalism, and currently resides in Kentucky.

 

 

 

Secretary
Tiffany Ethington
Tiffany lives in Kentucky and has worked behind the scenes for years, helping with projects and supporting efforts concerning Sturge-Weber syndrome (SWS). Her son, Glen, was born with the rare disease. Tiffany, along with others affected by SWS, helped to found the Sturge-Weber Syndrome Community (SWSC). Tiffany and Glen have been advocates for SWS and vascular birthmarks, and have spearheaded fundraising campaigns and awareness projects. She also serves as the Patient Advocate and Welcome Volunteer for the SWSC.
 

 

Parent Rep/KT Syndrome
Sharon Israel
 

 

 

 

 

 

Coordinator of Walk / Run Events, Parent Rep
Jody Lee
Jody and her husband, John, live with their daughter, Meghana in Lake Orion, Michigan. Meghana was born in 2015 with a port wine stain on the right side of her face. Prior to starting treatment, the Lee family connected with the VBF and received invaluable support and advice. Meghana is being treated at the University of Michigan by Dr. Jeff Orringer and has had 9 laser treatments to date. The Lee family organized The 1st Purple Polka Dot Race in August 2015 and is hoping to make it an annual event to raise awareness and fundraise for the VBF. Jody is a physical therapist and works with people who have spinal cord and traumatic brain injuries.


 

Parent Rep
Kyla Manny

 

 

 

 

Day of Awareness Coordinator
Carla Mannix
Carla joined the VBF team in Dec. 2014 as an Administrative Assistant. She's excited about bringing her experiences as a returned Peace Corps Volunteer, ESL educator, non-profit affiliate developer, and surgical coordinator to VBF. Her passion is serving the needy and volunteering with social justice and peace groups. She also loves "winning" appeals for patients to get insurance coverage. She lives in Reading, PA with her husband and three children. Her daughter bravely manages a venous malformation in her foot.

 

 

Parent Rep
Sherry Parrish

 

 

 

 

 

Honorary Board (non-voting)

 

 

Elysa Baron, DC
Saige Cavayero
Erin Miller
Fran Muscarella
Sherry Crummy
Greg Antonelle
Jennie Legary
Lauri Firstenberg
Leslie Graff
Paige Parrish

 

 

 

 

Medical Directors (non-voting)

 

Martin C. Mihm Jr., M.D (East Coast)
Co-Medical Director

Director of Melanoma Program, 
Brigham and Women’s Hospital
Department of  Dermatology
41 Ave Louis Pasteur, Room  317B
Boston, MA 02115 
Office- 617-264-5910

mmihm@partners.org

Stuart Nelson, MD (West Coast)
Co-Medical Director

Beckman Laser Institute & Medical Clinic
University of California, Irvine
1002 Health Sciences Road East
Irvine, CA 92612-1475
Office: 949-824-7526

jsnelson@uci.edu

 

VBF Honorary Co-Chairs


 

VBF Honorary Co-Chairpersons
Frank and Barbara Catalanotto
Please join the VBF in welcoming professional baseball player Frank Catalanotto and his wife Barbara as Honorary Chairpersons. We know that by having their enthusiasm and support, VBF can make a real difference in this world.

 

Frank Catalanotto was one of the top hitters in the Major Leagues in 2001, finishing with a batting average of .330 and challenging for the American League batting title.

 

While Frank is a professional baseball player with an impressive record, he is also a spouse and parent just like you and I. And when he and Barbara had their daughter in 1999, they were perplexed by a strange mark on her face that was soon diagnosed as a type of vascular birthmark called a "hemangioma."

 

 

VBF Staff /Paid Contractors (non-voting)

 

President and Founder
Linda Rozell-Shannon, PhD 
Linda and her daughter, Christine, reside in upstate New York. Linda founded VBF after her daughter was born with a hemangioma on her lower lip and she was unable to find information on treatment options. Dr. Waner surgically removed Christine's hemangioma in 1995. Linda and Dr. Waner wrote the only book for parents on the subject of birthmarks called "Birthmarks: A Guide to Hemangiomas and Vascular Malformations." Linda is also a chapter author in the Facial Plastic Surgery Clinics of North America textbook on "Vascular Birthmarks of the Head and Neck" (published in 2001), which was guest edited by Dr. Marcelo Hochman.

 

Dr. Linda Rozell-Shannon completed her PhD in 2008 at Walden University. Her dissertation topic: Assessing the Impact of Hemangiomas on Maternal Stress was written to support insurance appeals for families denied coverage.

 

 

 

Staff

 

 

Business Office Director
Scott Cupples
1st Sergeant Scott L. Cupples of the United States Air Force first contacted Dr. Linda Rozell-Shannon and the Vascular Birthmarks Foundation (VBF) to attend their annual conference being held in New York City on October 8, 2016. Scott has an “aging” Port Wine Stain which means it was beginning to thicken, change texture, and develop nodules. These nodules, when in the beard area, can easily pop and bleed when shaving. This progression makes treatment a necessity, rather than a cosmetic issue.

 

 

 

 

Office Manager
Lauren Palmateer
Lauren Palmateer is the Financial Administrator for VBF. She has been with VBF since the summer of 2001 and has served VBF in a number of capacities over the years. Lauren is a wife, mother and high school history teacher at a school in Upstate New York. She has an interest in medical issues and a love for children.

 

 

 

 

Web Administrator
Missy Scott
Missy has been with VBF since 1999 and has taken care of our websites through many iterations.

 

 

 

Social Media Coordinator
Lisa Marie Bianchi
Lisa joined VBF in 2016.

 

 

Event Coordinator and Marketing
Stacy Leistner
Stacy helped to plan and execute the 2016 Conference and VBF was so pleased with his work that we begged him to never leave us. He’s a good egg.

 

Casey Charles (p/t - staff)
Assistant to Web Administrator