Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.


Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.


Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.


Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.


Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.


Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.


Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.


Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.


Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!


Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.


Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.


Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.


Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.


Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.


Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.


Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.


Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.


Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.


Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.


Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.


Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.


Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.


Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.


Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.


Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.


Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.


Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.


Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (, your questions about make-up.


Eileen O'Connor, Adult Living with PWS


Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from will answer makeup related concerns.


Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.


Dr. Thomas Serena, Wound Care Expert


Sarina Patel, Young Adult Advocate



What Our Families Are Saying About Us


"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.


Vascular Birthmarks Foundation Conference | Island Hotel/Beckman Laser Institute | October 12, 2013

7:15-8:00 Day care check-in, Registration check-in, Breakfast


8:00-8:30 Opening Remarks and Awards Presentations – Salon B & C (300)



Room: Salon B Capacity: 300

Room: C Capacity: 200


PWS & Hemangioma – Laser Therapy for Children and Adults – Dr. J. Stuart Nelson

Syndromes and Multi-disciplinary Team Management – Dr. Francine Blei


Sturge-Weber Syndrome (SWS) – Dr. Anne Comi

Klippel-Trenaunay Syndrome (KTS) Management – Dr. Kamiab Delfanian


Propranolol Treatment of Infantile Hemangiomas

– Dr. Stuart Nelson

Surgical Management of Vascular Malformations – Dr. Milton Waner


Surgical Management of Hemangiomas

– Dr. Greg Levitin

History of Drug Therapies for Hemangiomas – Dr. Milton Waner


Vascular Birthmarks Research – Dr. Martin Mihm

Small Molecule Discovery Targeting Vascular Anomalies - Dr. Ramani Ramchandran





Role of Diagnostic and Interventional Radiology to Treat Vascular Lesions – Drs. Anton Hasso and Laura Findeiss

What is a Vascular Birthmark? – Dr. Linda


Interventional Treatment of Extremity & Trunk Lesions – Dr. Robert Rosen

Lymphatic Malformations – Dr. Joseph Edmonds


KTS – Compression Therapy Facts – Dr. Kamiab Delfanian

Psychosocial Issues and Vascular Birthmarks (Concerning Adults) – Leslie Graff


Psychosocial Family Issues and Vascular Birthmarks (Concerning Infants and Children) – Leslie Graff

Orbit Lesions – Dr. Aaron Fay


Q and A Session (Salon B) Speakers from this track

Q and A Session (Salon C) Speakers from this track





Clinics - Beckman Laser Institute

Clinics- Beckman Laser Institute



Rooms for Special Sessions from 1:00 – 6:00pm Teams/Leaders:
1) Make up – Kimberly Heinzman 1) Hemangiomas – Dr. Milton Waner, Dr. Aaron Fay
2) Insurance – Basia Joyce/Andrea Giancarli 2) Malformations of the H&N – Dr. Gregory Levitin, Dr. Joseph Edmonds,
3) Dental/Orthodontal exams – Dr. Carrol Fenn 3) Extremity & Internal Malformations – Dr. Robert Rosen, Findeiss, Hasso
4) VBF Support Group Sessions - Leslie Graff 4) PWS – Dr. J.Stuart Nelson, Dr. Martin Mihm
5) Daycare - Erin Miller (7:15 - 12:30) 5) SWS – Dr. Anne Comi, Dr. Francine Blei
  6) KTS – Dr. Kamiab Delfanian, Dr. Linda Rozell-Shannon