Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.


Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.


Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.


Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.


Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.


Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.


Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.


Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.


Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!


Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.


Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.


Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.


Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.


Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.


Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.


Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.


Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.


Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.


Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.


Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.


Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.


Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.


Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.


Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.


Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.


Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.


Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.


Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (, your questions about make-up.


Eileen O'Connor, Adult Living with PWS


Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from will answer makeup related concerns.


Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.


Dr. Thomas Serena, Wound Care Expert


Sarina Patel, Young Adult Advocate



What Our Families Are Saying About Us


"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.


Alex and Ani Fundraiser to Benefit the Vascular Birthmarks Foundation, March 17th

Alana and Olivia enjoyed picking out jewelry


The March 17th Alex and Ani Charmed by Charity event succeeded in raising $212 in one night! Thank you, Sharon, for organizing this and helping VBF reach more parents with a message of hope.




Everyone loves Alex and Ani jewelry, so please join us for a very special fundraiser to benefit the Vascular Birthmarks Foundation (VBF). Charmed by Charity is an event being held at Alex and Ani, 34 E Ridgewood Ave, Ridgewood, NJ 07450 on March 17, 2015 from 6PM – 8PM. 15% of all sales will go directly to VBF. You need not be present to participate in this fundraiser (please see details below).


This event is being organized by Sharon Israel Childs in honor of her 8 year old daughter, Olivia. Olivia has Klippel-Trenaunay Syndrome with venous malformations throughout her right leg and foot.


IF YOU LIVE OUT OF STATE OR ARE UNABLE TO ATTEND, you can call the store in Ridgewood, NJ as early as today until 5:00 PM EST on March 17th to place an order. The Ridgewood store phone number is (201) 857-0911. You MUST mention the VBF fundraiser in order for VBF to receive the 15% on your order.




  • To view Alex and Ani merchandise, please visit their website at HOWEVER, DO NOT ORDER THROUGH THIS WEBSITE as VBF will NOT receive the 15%.


  • VBF will ONLY receive 15% of the sales on merchandise that is in stock at the Ridgewood store – online orders will not benefit VBF. When you call the Ridgewood store, please ask if the item you are interested in is in stock.


  • In stock merchandise purchased via the telephone can be shipped to your home for $7.00.


  • If you are calling to place an order on the day of the event, please call before 5PM, before they get busy with the fundraiser crowd.


To view Alex and Ani merchandise, please visit their website at WWW.ALEXANDANI.COM. PLEASE DO NOT ORDER THROUGH THIS WEBSITE as VBF will not receive the 15%.


Again, you can support this event by placing a phone order for in-stock products at the store at (201) 857-0911 and mentioning the VBF fundraiser.


Thank you for spreading your positive energy with VBF so we can spread the word about resources for families affected by a vascular birthmark!


As mentioned, if you are unable to attend, please support this event by placing a phone order as described above.


For questions about this event, please email Sharon Israel Childs at, or call her at (201)689-3176.