Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2015
Celebrating 21 years with
80,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
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Ask the VBF Experts

Dr. Stuart Nelson, VBF Co-Medical Director and International Port Wine Stain Laser Specialist
Dr. Nelson will answer your questions concerning the diagnosis and treatment of Port Wine Stains.


Dr. Gregory Levitin, Hemangioma and Malformations Surgeon, NYC and LA
Dr. Levitin will answer your questions regarding the surgical treatment of all vascular birthmarks and tumors.


Dr. Robert Rosen, Vascular Lesions of Arms and Legs Interventional Radiologist
Our expert for all non-brain AVMs and vascular lesions of the arms and legs, Dr. Rosen welcomes your questions.


Dr. Roy Geronemus, NYC and International Laser Specialist
If you have a question or concern about laser treatments in general, contact Dr. Geronemus.


Dr. Milton Waner, Hemangioma and Malformations Surgeon
Email Dr. Waner with questions regarding hemangiomas and other vascular lesions.


Dr. Aaron Fay, Hemangioma and Malformation Eye Surgeon
Dr. Fay will answer your questions about orbital birthmarks.


Corinne Barinaga, VBF Family Services Director
Corinne Barinaga, our Administrative Director, will answer emails concerning family advocacy, treatment questions, or physician referral.


Dr. Martin Mihm, VBF Co-Medical Director and Research Director
Dr. Mihm is coordinating and directing research regarding vascular birthmarks and tumors.


Dr. Darren Orbach, Pediatric Neurointerventionalist for AVMs and PHACE
VBF is proud to welcome Dr. Orbach!


Dr. Anne Comi, Sturge Weber Syndrome Specialist
One of the leading experts on Sturge Weber Syndrome, Dr. Comi will be responding to your questions concerning this syndrome.


Dr. Alex Berenstein, Malformations and AVM Interventional Radiologist
Ask Dr. Berenstein your questions regarding interventional radiology.


Dr. Kami Delfanian, KTS Treatment Specialist
Send your questions concerning KT Syndrome to Dr. Delfanian.


Dr. Barry Zide, NYC Hemangioma and Malformations Surgeon
If you have a question or concern about hemangioma and vascular malformation treatment in general, contact Dr. Zide.


Dr. Joseph Edmonds, Lymphatic Malformations Surgeon
Ask Dr. Edmonds your questions related to Lymphatic Malformations.


Anna Duarte, M.D., Florida Expert
Ask our expert Dr. Duarte, your questions about receiving treatment in Florida.


Dr. Orhan Konez, Interventional Radiologist
Questions regarding reading and interpreting films and treating malformations with sclerotherapy or embollization can be sent to Dr. Orhan Konez.


Dr. Steven Fishman, Internal Lesions Surgeon
Ask Dr. Fishman your questions about liver and other internal vascular lesions.


Rafael Ortiz, MD, Neuro-endovascular Surgeon
Ask Dr. Ortiz your questions about vascular tumors of the head and neck region, cerebral and spinal arteriovenous malformations, treatment of craniofacial vascular lesions (venous, lymphatic, AVMs, hemangiomas) in adults and children.


Dr. Calil, Lymphatic Malformation Surgeon
Dr. Calil will answer your questions about Lymphatic Malformations.


Elissa-Uretsky Rifkin, M.Ed. CMHC Midwest Developmental Specialist
A trained developmental specialist and is on the board of VBF. Send questions concerning hemangiomas and this topic to Elissa.


Dr. Stavros Tombris, European Surgeon
Fr. Tombris treats all forms of hemangomas, port wine stains and malformations.


Dr. Stevan Thompson, Military (Tricare) Surgeon
Dr. Stevan Thompson has joined us to answer questions concerning the treatment of vascular birthmarks in the military.


Dr. Helen Figge, Pharmacist
If you or your child has a vascular birthmark and you have a question regarding a prescription drug, please ask Doc Helen Figge.


Dr. Linda Rozell-Shannon, VBF President and Founder
Dr. Linda Rozell-Shannon is the leading lay expert in the world on the subject of vascular birthmarks.


Lex Van der Heijden, CMTC Foundation
If you or your child has CMTC, please contact Lex with your questions.


Leslie Graff, East Coast Developmental Specialist
Leslie is a trained developmental specialist. Send questions concerning port wine stains and this topic to Leslie.


Linda Seidel - Make-up Expert
Ask Linda Seidel your questions about make-up.


Nancy Roberts - Make-up Specialist
Ask our expert Nancy Roberts, Co-Creator of Smart Cover Cosmetics (, your questions about make-up.


Eileen O'Connor, Adult Living with PWS


Laurie Moore, Make Up Expert from Colortration
Laurie Moore, from will answer makeup related concerns.


Alicita, Spanish Expert
Ask our expert Alicita, your questions in Spanish.


Dr. Thomas Serena, Wound Care Expert


Sarina Patel, Young Adult Advocate



What Our Families Are Saying About Us


"We relied on the Vascular Birthmarks Foundation to provide us with the information, the contacts, the resources, and the support that we needed to get through this difficult time. Their theme, "We are making a difference" couldn't be more accurate. For us, it was all the difference in the world."
Jill Brown


Hi Linda
Just a note to say how wonderful I found the interview of you and Capital 9 news. Thanks so much for your devotion.


The 20th Anniversary "Mark of Beauty" Gala

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The Vascular Birthmarks Foundation 20th Anniversary Gala

To register for the gala, click here:

Note: You can register on line or download and print the PDF and mail it to VBF, PO Box 106, Latham, NY 12110.

Mail in pdf gala ticket purchase form

To register by phone, with a credit card, contact Basia Joyce, VBF Executive Assistant at 518-495-3938. For any questions concerning the conference or gala, email:


The Vascular Birthmarks Foundation is thrilled to announce that October 2014 marks our 20th Anniversary of assisting families affected by a vascular birthmark or associated syndrome. Throughout 2014 we will be celebrating our accomplishments such as over 3,000,000 monthly visits on websites with chapters on 6 continents, 75,000 networked into treatment, over 500 families provided free lodging while seeking a medical opinion or treatment, over 400 conference scholarships awarded, over 200 Day of Awareness events, over 100 insurance appeals successfully challenged, 15 conferences, 12 new programs (including our Ask/Accept Anti Bullying campaign), 10 walk/runs, 6 research projects funded, 4 physician education grants awarded, 4 college scholarships awarded, 2 International Missions Trips with over 300 treated by our international. We have exceeded all of our expectations!

On Friday, October 10, 2014, we will be hosting our 20th Anniversary “Mark of Beauty” Gala at the Hudson Theatre located at 145 West 44th Street, New York City, from 7pm until 10pm. Cost to attend will be $150 per person or $2,000 for a table of 10 (this includes 5 raffle tickets per person which are worth $20 each raffle ticket, or a value of $100 per person). Anyone with a vascular birthmark can attend for free by contacting Basia Joyce at

The Chairs for our 20th Anniversary “Mark of Beauty” gala are Dr. and Mrs. Robert Rosen and Frank and Barbara Catalanotto.  

Dr. Rosen chairs the Lenox Hospital Vascular Anomalies Program and Co-hosts the VBF biennial conference in NYC. He is also very instrumental in the VBF international outreach program. 

Frank and Barbara Catalanotto are the Honorary Chairs of the Vascular Birthmarks Foundation. Their daughter, Morgan, was diagnosed with a hemangioma. This diagnosis led them to the VBF. Frank is a former professional baseball player, and he and his wife Barbara are the leading fund raisers for VBF.

We are pleased to announce that this year's celebrity performer will be renowned comedian Mike Stankiewicz. Mike has a port wine stain vascular birthmark. He will share his light hearted humor and also reflect on his own experiences about living with a vascular birthmark. VBF is thrilled to have Mike as the celebrity performer for our 20th Anniversary celebration. Read about Mike and check out his YouTube video. 

As noted above, the cost to attend this year’s “Mark of Beauty” gala is $150 per person, or $2,000 per table of 10 (with 5 free raffle tickets per person). Anyone with a vascular birthmark can attend for free by contacting Basia Joyce at Attire is dinner/cocktail. We had a sell-out crowd in 2008 and in 2010 and expect to sell out again this year, so please register early. There will be many commemorative events at the gala, to honor our 20 years of accomplishments. If you are coming, bring tissue – there will not be a dry eye in the house!

Dr. Martin Mihm, Jr. will be honored as 20th Anniversary Physician of the year.

VBF will be holding our 20th Anniversary conference and clinic the day after the gala at the Lenox Hill Hospital. To learn more about the conference, please visit