ASK THE VBF EXPERTS
Dr. Stuart Nelson
VBF Co-Medical Director
Diagnosis and treatment of Port Wine Stains
Dr. Robert Rosen
All non-brain AVMs and vascular lesions of the arms and legs
Dr. Roy Geronemus
Laser treatments
Dr. Milton Waner
Surgical treatment of hemangiomas, malformations and other vascular lesions
Dr. Aaron Fay
Surgical treatment of orbital birthmarks
Corinne Barinaga
VBF Family Services Director
Family advocacy, treatment questions, and physician referrals
Dr. Martin Mihm
VBF Co-Medical Director and Research Director
Research regarding vascular birthmarks and tumors
Dr. Darren Orbach
Pediatric Neurointerventiolanist for AVMs and PHACE
Dr. David Darrow
Hemangiomas and PWS for teeth / gums
Dr. Anne Comi
Sturge Weber Syndrome
Dr. Alex Berenstein
Interventional radiology
Dr. Kamiab Delfanian
KTS diagnosis and treatment
Dr. Joseph Edmonds
Surgical treatment of Lymphatic Malformations
Dr. Ana Duarte
Laser surgery and medical management of Infantile Hemangiomas and PWS
Dr. Orhan Konez
Reading and interpreting films and treating malformations with sclerotherapy or embollization
Dr. Steven Fishman
Liver and other internal vascular lesions
Dr. Gregory Levitin
Surgical treatment of all vascular birthmarks and tumors
Dr. Rafael Ortiz
Surgical treatment of tumors of the head and neck region, cerebral and spinal arteriovenous malformations, and treatment of craniofacial vascular lesions
Dr. Francine Blei
PHACE Syndrome
Dr. Calil, Lymphatic Malformation Surgeon
Lymphatic Malformations
Dr. Stavros Tombris (Europe)
Surgical treatment of hemangomas, port wine stains and malformations
Dr. Steven Kane
SWS Glaucoma Expert
Dr. Thomas Serena
Wound care
Dr. Helen Figge (Pharmacist)
Prescription drugs
Dr. Linda Rozell-Shannon
VBF President and Founder
World’s leading lay expert on the subject of vascular birthmarks
Lex Van der Heijden (CMTC Foundation)
Cutis marmorata telangiectatica congenita (CMTC)
Leslie Graff
East Coast Developmental Specialist
Trained developmental specialist
Elissa-Uretsky Rifkin, M.Ed. CMHC
Midwest Developmental Specialist
Trained developmental specialist
Eileen O'Connor (Peer Counseling)
Adult living with PWS
Sarina Patel (Peer Counseling)
Young adult advocate
Linda Seidel (Make-up Specialist)
Cosmetic coverage of birthmarks
Nancy Roberts (Make-up Specialist)
Cosmetic coverage of birthmarks
Co-Creator of Smart Cover Cosmetics (www.smartcover.com)
Alicita (Spanish Expert)
Spanish translator for interface with VBF experts
What Our Families Are Saying About Us
I know a lot of your work is to help children with vascular birthmarks,
and I am so glad you do that. But you also helped me in a big way when I was
in my 40's, and now again at the age of 60. [read more]