Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2015
Celebrating 21 years with
90,000 networked into treatment

Dr. Linda Rozell-Shannon, PhD President and Founder
Donate to VBF    Find a Doctorbefore and after photos
 

Discussion

VBF no longer maintains an active discussion forum. You may post questions and/or concerns on our VBF Facebook page. We are also providing a list of Facebook pages that may be appropriate for the vascular birthmark type that you or a loved one has been diagnosed with. There are many vascular birthmark groups on Facebook. The following are some examples but do not represent an exhausted list. You can google the name of the various vascular birthmarks/anomalies types and find many closed and open groups which encourage discussion. VBF also randomly monitors some groups to provide information to affected individuals and families.



The Vascular Birthmarks Foundation

https://www.facebook.com/VascularBirthmarksFoundation/?fref=ts



Hemangiomas


Hemangioma Parents Group

https://www.facebook.com/groups/3754730459/


Hemangioma Awareness

https://www.facebook.com/groups/354995278960/



Port Wine Stains


Birthmark: Port Wine Stain Family and Friends

https://www.facebook.com/groups/55234396639/


I Have or Know Someone with a Port Wine Stain

https://www.facebook.com/groups/307618847588/



Venous Malformations


Venous Malformation Vascular Malformation Support Group

https://www.facebook.com/groups/venousmalformation/


Venous Malformation (Closed Group)

https://www.facebook.com/groups/253196503124/



Arteriovenous Malformations


AVM (Arteriovenous Malformation) Awareness

https://www.facebook.com/groups/134820625466/


Arteriovenous Malformation (AVM)

https://www.facebook.com/groups/ArterialVenousMalformation/



Lymphatic Malformations


Lymphatic Malformations aka Lymphangioma, Cystic Hygroma

https://www.facebook.com/Lymphatic-Malformations-aka-Lymphangioma-Cystic-Hygroma-121936387825336/?fref=ts


Lymphatic Malformation Awareness

https://www.facebook.com/LMawareness/?fref=ts



PHACE Syndrome


PHACE Syndrome Community

https://www.facebook.com/groups/phacesyndromecommunity/


PHACE Syndrome Community Friends

https://www.facebook.com/PhaceSyndromeCommunityFriends/?fref=ts



Sturge Weber Syndrome


Sturge Weber Awareness

https://www.facebook.com/groups/65195578382/


Sturge Weber Syndrome Community

https://www.facebook.com/groups/69904455971/



Klippel Trenaunay Syndrome


Klippel Trenaunay Weber Syndrome (KTWS) Support Group

https://www.facebook.com/groups/64987887844/


Klippel Trenaunay (KTS) Discussion Group

https://www.facebook.com/groups/439395456085146/



CMTC Cutis Marmorata Telangiectasia Congenita


Cutis marmorata telangiectasia congenita

https://www.facebook.com/groups/172914172819753/


MLT/CVAT - Multifocal
Lymphangioendotheliomatosis with Thrombocytopenia


Parents and Loved ones of MLT/CVAT kids

https://www.facebook.com/groups/371378918500/