Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2018

Dr. Linda Rozell-Shannon, PhD President and Founder
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VBF no longer maintains an active discussion forum. You may post questions and/or concerns on our VBF Facebook page. We are also providing a list of Facebook pages that may be appropriate for the vascular birthmark type that you or a loved one has been diagnosed with. There are many vascular birthmark groups on Facebook. The following are some examples but do not represent an exhausted list. You can google the name of the various vascular birthmarks/anomalies types and find many closed and open groups which encourage discussion. VBF also randomly monitors some groups to provide information to affected individuals and families.



The Vascular Birthmarks Foundation





Hemangioma Parents Group


Hemangioma Awareness



Port Wine Stains


Birthmark: Port Wine Stain Family and Friends


I Have or Know Someone with a Port Wine Stain



Venous Malformations


Venous Malformation Vascular Malformation Support Group


Venous Malformation (Closed Group)



Arteriovenous Malformations


AVM (Arteriovenous Malformation) Awareness


Arteriovenous Malformation (AVM)



Lymphatic Malformations


Lymphatic Malformations aka Lymphangioma, Cystic Hygroma


Lymphatic Malformation Awareness



PHACE Syndrome


PHACE Syndrome Community


PHACE Syndrome Community Friends



Sturge Weber Syndrome


Sturge Weber Awareness


Sturge Weber Syndrome Community



Klippel Trenaunay Syndrome


Klippel Trenaunay Weber Syndrome (KTWS) Support Group


Klippel Trenaunay (KTS) Discussion Group



CMTC Cutis Marmorata Telangiectasia Congenita


Cutis marmorata telangiectasia congenita


MLT/CVAT - Multifocal
Lymphangioendotheliomatosis with Thrombocytopenia


Parents and Loved ones of MLT/CVAT kids