Vascular Birthmarks Foundation Hemangiomas  |  Port Wine Stains  |  Vascular Malformations  
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1994 - 2018

Dr. Linda Rozell-Shannon, PhD President and Founder
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VBF no longer maintains an active discussion forum. You may post questions and/or concerns on our VBF Facebook page. We are also providing a list of Facebook pages that may be appropriate for the vascular birthmark type that you or a loved one has been diagnosed with. There are many vascular birthmark groups on Facebook. The following are some examples but do not represent an exhausted list. You can google the name of the various vascular birthmarks/anomalies types and find many closed and open groups which encourage discussion. VBF also randomly monitors some groups to provide information to affected individuals and families.

The Vascular Birthmarks Foundation


Hemangioma Parents Group

Hemangioma Awareness

Port Wine Stains

Birthmark: Port Wine Stain Family and Friends

I Have or Know Someone with a Port Wine Stain

Venous Malformations

Venous Malformation Vascular Malformation Support Group

Venous Malformation (Closed Group)

Arteriovenous Malformations

AVM (Arteriovenous Malformation) Awareness

Arteriovenous Malformation (AVM)

Lymphatic Malformations

Lymphatic Malformations aka Lymphangioma, Cystic Hygroma

Lymphatic Malformation Awareness

PHACE Syndrome

PHACE Syndrome Community

PHACE Syndrome Community Friends

Sturge Weber Syndrome

Sturge Weber Awareness

Sturge Weber Syndrome Community

Klippel Trenaunay Syndrome

Klippel Trenaunay Weber Syndrome (KTWS) Support Group

Klippel Trenaunay (KTS) Discussion Group

CMTC Cutis Marmorata Telangiectasia Congenita

Cutis marmorata telangiectasia congenita

MLT/CVAT - Multifocal
Lymphangioendotheliomatosis with Thrombocytopenia

Parents and Loved ones of MLT/CVAT kids