The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

VBF Parent Advocacy Network

Parent Advocacy Network Graphic

The VBF Parent Advocacy Network is a series of 60-90 minute monthly facilitated virtual sessions established to provide psychosocial and community support to families affected by a vascular birthmark, anomaly, and/or related syndrome and to explore affected family’s needs.  This series explores a different topic each month beyond diagnosis and treatment options. Featuring activities, special guest co-hosts, and tools to equip you in this birthmark journey, attendees are encourage to turn on their cameras and microphones and participate in the conversation.  

We invite parents to join even if they are not needing answers. You might have the answer through experience to help others.


Date: September 18, 2023
Time: 8PM EDT/ 5PM PDT

Note: VBF Parent Advocacy Network Zoom sessions require pre-registration. Once you pre-register, the link to join will follow via e-mail receipt. Leslie Graff, M.S., C.C.L.S., Psychosocial and Developmental Expert:

Leslie has been the VBF Child Life Specialist for more than 15 years and is the mother of four sons, one of which has a Port Wine Stain Birthmark, which is how she became involved with the VBF. Leslie has a Bachelors in Elementary Education and Masters in Marriage, Family, and Human Development from Brigham Young University. She completed her child life training at Johns Hopkins Children’s Center and is a certified child life specialist, trained to address the psychosocial/emotional needs of children and adolescents in relation to their medical conditions by providing psychological preparation, and therapeutic support activities. She worked as a child life specialist at University of California San Francisco Medical Center and was on the faculty at Ohlone College. She has worked with thousands of children in countries around the world as a child life specialist for Operation Smile medical missions She lives in Massachusetts with her husband and 3 sons. One of her sons has a port wine stain.

September 2023 Parent Advocacy Network

 Registration is closed for this event
Join VBF Expert and Child Life Specialist Leslie Graff, M.S., C.C.L.S., and VBF Chief Operating Officer Scott Cupples in September 2023 for the VBF Parent Advocacy Network (PAN) Zoom session and explore what it means to be a parent navigating the VBARS journey.

Join VBF Expert and Child Life Specialist Leslie Graff, M.S., C.C.L.S., and VBF Chief Operating Officer Scott Cupples on September 18, 2023 for the VBF Parent Advocacy Network (PAN) Zoom session and explore what it means to be a parent navigating the VBARS journey.

We invite parents to join, even if you are not in need, as you may have experiences that can benefit others on the call. Our sessions are never recorded to allow for open, honest dialogue, and will continue every other month for the remainder of 2023. Pre-register and send in your psychosocial questions. Following pre-registration you will receive the Zoom Call information ahead of the event. 

September 18th, 2023 8:00 PM