Individuals on this list include parents or relatives of someone born with a vascular birthmark, as well as adults with vascular birthmarks who have agreed to make themselves available either by phone, in person, or by writing to discuss your mutual experiences in dealing with a vascular birthmark. None of these individuals are medical experts and they do not provide medical information. Instead, they can offer mutual support from a family perspective.
The Family Resource List is in alphabetic order by state. Family resources outside of the US are listed at the end in alphabetic order of country.
My daughter Madeleine just turned 3 in September
and has three hemangiomas. One on her eyelid, a superficial one on
her back and a compound on her face. She has had the one on her face
removed and lasered by Dr. Waner in February 2005. We dealt with
lots of bleeding and other problems before we met with Dr. Waner. I
know I personally wish that there was someone that I could have
talked to when we were dealing with this.
Clive, IA 50325
Type of Birthmark: port wine
I was born with a port wine on the right half of my face. I am 47
yrs old and have had about 15 laser treatments. My birthmark is about 80%
faded. I am very happily married to a great man for 23 years and have 2
children. I would like to help in any way.
My daughter has a deep hemangioma on her right cheek/nose. It has responded very well to steroid injections and we have postponed surgery for the time being.
Anita is the mother of a daughter, Danielle, who had a hemangioma between her eyes. It was removed by Dr. Waner in 1996, when Danielle was four years old.
Des Moines, Iowa
My daughter has a port wine stain on her forehead, eye, and cheek. We began laser treatments in infancy and are also monitoring her for glaucoma.
Los Angeles, CA
My daughter Abrielle (now 11) has been a patient of Dr. Waner’s since she was 2 years old. Her nasal tip hemangioma was rather serious and she had multiple surgeries to correct it, the most recent to give her a nasal tip and to remove the last vestages of the hemangioma.
Springfeild, MO 65802
Child with internal and external hemangioma of the head and eye. Rapid growth deep eye orbit hemangioma requiring early surgery intervention to prevent loss of sight in the eye.
Son (11 mths) has nasal tip hemangioma and is being treated with oral steroids and laser. Also has port wine stain on his chest that is being treated with laser.
Beth Schiffer Benedetti
Beth has a daughter with a hemangioma
My 2 1/2 year old son has a VM on his L side of his face and has had 4 surgeries so far with Dr. Waner.