The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Thank you for visiting our VBF Family Resources Contact List

Individuals on this list include  parents or relatives of someone born with a vascular birthmark, as well as adults with vascular birthmarks who have agreed to make themselves available either by phone, in person, or by writing to discuss your mutual experiences in dealing with a vascular birthmark. None of these individuals are medical experts and they do not provide medical information. Instead, they can offer mutual support from a family perspective.

The Family Resource List is in alphabetic order by state. Family resources outside of the US are listed at the end in alphabetic order of country.


Other Useful Resources


Amanda Jackson

Amanda Jackson
Hartly, DE
amandie_826@yahoo.com
My daughter Madeleine just turned 3 in September
and has three hemangiomas. One on her eyelid, a superficial one on
her back and a compound on her face. She has had the one on her face
removed and lasered by Dr. Waner in February 2005. We dealt with
lots of bleeding and other problems before we met with Dr. Waner. I
know I personally wish that there was someone that I could have
talked to when we were dealing with this.

Amy Brody

Amy Brody
abzb4@aol.com
Clive, IA 50325
Type of Birthmark: port wine
I was born with a port wine on the right half of my face. I am 47
yrs old and have had about 15 laser treatments. My birthmark is about 80%
faded. I am very happily married to a great man for 23 years and have 2
children. I would like to help in any way.

Amy Lyons

Amy Lyons
(563)349-8149
lye_66219@yahoo.com
Iowa
My daughter has a deep hemangioma on her right cheek/nose. It has responded very well to steroid injections and we have postponed surgery for the time being.

Anita Francis

Anita Francis
Destin, Florida
850-650-1825
francadams@cox.net
Anita is the mother of a daughter, Danielle, who had a hemangioma between her eyes. It was removed by Dr. Waner in 1996, when Danielle was four years old.

Anna Whipple

Anna Whipple
Des Moines, Iowa
anna.whipple@gmail.com
(515) 371-2303
My daughter has a port wine stain on her forehead, eye, and cheek. We began laser treatments in infancy and are also monitoring her for glaucoma.

Anne Josephson

Anne Josephson
Los Angeles, CA
home–310-827-8341
work–310-287-9886
email jaggym@hotmail.com
My daughter Abrielle (now 11) has been a patient of Dr. Waner’s since she was 2 years old. Her nasal tip hemangioma was rather serious and she had multiple surgeries to correct it, the most recent to give her a nasal tip and to remove the last vestages of the hemangioma.

Ashley Slater

Ashley Slater
Springfeild, MO 65802
ashleyallen_slater@hotmail.com
Child with internal and external hemangioma of the head and eye. Rapid growth deep eye orbit hemangioma requiring early surgery intervention to prevent loss of sight in the eye.

Beth Eldridge

Beth Eldridge
Vienna, VA
(703) 438-3738
buywithbk@aol.com
Son (11 mths) has nasal tip hemangioma and is being treated with oral steroids and laser. Also has port wine stain on his chest that is being treated with laser.

Beth Schiffer Benedetti

Beth Schiffer Benedetti
Phone (212-233-6512)
Beth has a daughter with a hemangioma

Betsy Lamb

Betsy Lamb
Charlotte, NC
elamb1@carolina.rr.com
My 2 1/2 year old son has a VM on his L side of his face and has had 4 surgeries so far with Dr. Waner.