Individuals on this list include parents or relatives of someone born with a vascular birthmark, as well as adults with vascular birthmarks who have agreed to make themselves available either by phone, in person, or by writing to discuss your mutual experiences in dealing with a vascular birthmark. None of these individuals are medical experts and they do not provide medical information. Instead, they can offer mutual support from a family perspective.
The Family Resource List is in alphabetic order by state. Family resources outside of the US are listed at the end in alphabetic order of country.
Daughter Elizabeth had large hemangioma on neck which local physicians did not know how to treat. In February 2005, Dr. Waner performed surgery to repair the scar tissue and eliminate redness.
So. Byron, NY
Sandy’s daughter Hannah had massive facial hemangioma and an airway hemangioma. Sandy is a nurse and works at the Hemangioma clinic at Buffalo Children’s Hospital with Dr. Linda Brodsky.
Madison, Ohio 44057
My son had a nasal tip hemangioma. He was on oral steroids for seven months, has had four laser treatments and two MRI’s with general anesthesia. When the local doctors stopped wanting to treat and said that we should wait until school age to remove his hemangioma we decided to get other opinions. On April 26, 2006 he had his hemangioma removed by Dr. Milton Waner. We are very pleased with the results, and were amazed by how caring Dr. Waner is.
Our daughter Alex was born with extensive venous malformations on the left side of her face, neck, mouth, and intracranial along with an extensive sinus pericranium. Alex has had 28 surgeries to date and is expected to have several more in AR with Dr. Waner and Dr. Berenstien in New York.
Three out of my four children have hemangiomas. My 5 year old daughter has an upper lip hemangioma. She was on oral steroids and also had surgery last year. My 2 year old daughter has one on her hand and received no treatment. Her twin sister has very small one on her arm.
Fort Leonard Wood, MO 65473
My ten year old son, Zachary, was born with what appeared to be a bruise on the left side of his face. At one and a half he was misdiagnosed with a hemangioma. Laser surgery was performed and left him permanently scarred. At three and a half years old his face started to grow, and he was finally diagnosed with a venous malformation. He is being treated by Dr. Buckmiller at Arkansas Children\’s Hospital. He has undergone numerous surgeries to include: laser treatments, sclerotherapy, scar revision, and had his first excision surgery in October 2008. To learn more about Zachary’s Journey you can visit his CaringBridge site at: www.caringbridge.org/visit/zacharyh
N. Massapequa, NY 11758
Stacie’s daughter, Haley had two hemangiomas: one on her forehead and one on her lip. Both were surgically removed by Dr. Waner.
Carbondale, Pa 18407
My daughter Taylor had a lare hemangioma in her pariotid gland and had it removed at 18 months. She is now a healthy, happy eleven year old. We had been to many doctors and hospitals before finding Dr. Waner. Thanks to his knowlwdge and fast acting he saved her from becoming facially paralyzed.
Daughter has a left cheek hemangioma.
Tiffany and Glenda Ethington
Sturge-Weber Syndrome Community
Tiffany’s son has SWS/PWS.