The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Thank you for visiting our VBF Family Resources Contact List

Individuals on this list include  parents or relatives of someone born with a vascular birthmark, as well as adults with vascular birthmarks who have agreed to make themselves available either by phone, in person, or by writing to discuss your mutual experiences in dealing with a vascular birthmark. None of these individuals are medical experts and they do not provide medical information. Instead, they can offer mutual support from a family perspective.

The Family Resource List is in alphabetic order by state. Family resources outside of the US are listed at the end in alphabetic order of country.


Other Useful Resources


Dan and Robin Simpson

Dan and Robin Simpson
Englewood, CO
303-694-9216
drsimpson5@msn.com
Their son James was born with a vascular malformation of neck and tongue and was treated by Dr. Yakes and also by Dr. Waner

Daniel Williams

Daniel Williams
Charlotte, NC 28269
danw1974@hotmail.com
Venous Malformation of my right hip that started to enlarge around the age
of 24. I had surgery on January 24, 2002 by a vascular surgeon who couldn’t
differentiate between tumor and tissue. The surgeon only removed 603 grams
of the tumor. After another 2.5 years, I found Dr. Hochman on the VBF
website. He referred to Dr. John McFadden, also in Charleston, who removed
the 2.8 kg mass within my vascular birthmark in a 6 hour operation. The
tumor was almost the size of a basketball.

David Cottengim

David Cottengim
Indianapolis, IN 46038
(317)294-3520
david.cottengim@comcast.net
David has a vascular malformation on his tongue

Dawn Da Rosa

Dawn Da Rosa
San Jose, CA
408-371-5337
dawndarosa@hotmail.com
Dawn’s daughter has a large hemangioma on her neck. Tried oral steroids and
laser treatment with continued growth. Hemangioma was successfully removed by Dr Reinisch in Los Angeles.

Debbie Harrison

Debbie Harrison
Weston, WV
LiDebbie4596@aol.com
Daughter was born with PWS and has been receiving treatment since nine months of age.

Deborah Brown

Deborah Brown
Columbia, MD
(410)381-7155
dbrown@jhudis.dev.jhu.edu
Deb’s neice had a massive hemangioma.

Dereyth Dwyer

Dereyth Dwyer
Coventry, RI 02816
401-828-4045
Dereyth’s daughter Kayla had a hemangioma between her eyes.

Diane Kappas

Diane Kappas
Sewickley, Pa.
(412)749-6090

Dru DiMattia

Dru DiMattia
Cape Coral, FL
941-945-2619
DdiMattia@aol.com
Dru has a facial port wine stain

Elissa Rifkin

Elissa Rifkin
Chapenl Hill, NC
My daughter was born with a nasal hemanagioma in Dec. 1989. She was left untreated until she was 11 years old. Since then she has received three laser treatments and will have corrective surgery this summer, by Dr. Milton Waner.
e-mail: elissarifkin@gmail.com