The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

Thank you for visiting our VBF Family Resources Contact List

Individuals on this list include  parents or relatives of someone born with a vascular birthmark, as well as adults with vascular birthmarks who have agreed to make themselves available either by phone, in person, or by writing to discuss your mutual experiences in dealing with a vascular birthmark. None of these individuals are medical experts and they do not provide medical information. Instead, they can offer mutual support from a family perspective.

The Family Resource List is in alphabetic order by state. Family resources outside of the US are listed at the end in alphabetic order of country.


Other Useful Resources


Jennifer Shadle

Jennifer Shadle
Chambersburg, Pa
717-360-0415
jennjakes@comcast.net
I am the mother to a fantastic 3 year old boy named Jonah. Jonah was born with a port wine stain on the left side of his face and eyelid. He has currently had 8 pulse dye laser treatments, with wonderful results.

Jessica Wallace-Sutzko

Jessica Wallace-Sutzko
Dallas, Pa
jwsutzko@hotmail.com

Jill and Paul Brown

Jill and Paul Brown
Grimes, IA
jilldalenb@hotmail.com
We have a daughter with a large hemangioma on the side of her head/neck/ear.

Jim Murphy

Jim Murphy
Hazlet,NJ
s0713934@monmouth.edu
732-865-1474
I was born in 1990 with a port wine stain on the left side of my face, I’ve been receiving laser treatments since I was 6 months old and I’m currently being treated by Dr. Geronemus in New York.

Jim Murphy

Jim Murphy
Hazlet,NJ
s0713934@monmouth.edu
732-865-1474
I was born in 1990 with a port wine stain on the left side of my face, I’ve been receiving laser treatments since I was 6 months old and I’m currently being treated by Dr. Geronemus in New York.

Jinny Wylie

Jinny Wylie
Gaffney, SC
phone 864-487-1035
email mom2austinhunter@msn.com
son has pws / sws and vascular malformations.

Jodie Kauer Mader

Jodie Kauer Mader
South Dakota
jmader@rap.midco.net
I have a facial birthmark and glaucoma in the
eye that is affected by the birthmark. I have had 48 laser
surgeries.

John and Debra Foley

John and Debra Foley
Apex, NC
919 387 0984

John Pica

John Pica
Winchester, KY
Phone: 859-744-4955
jpica@adelphia.net
Our daughter had a hemangioma on the nose (alar ridge), bith cutaneous and
subcutaneous. She had laser treatments through Dr. Waner and it was very
successful. We found him through Linda’s book and website in 1998.

Joyce Cubberly

Joyce Cubberly
Brick, NJ
609-426-6324