The VBF Parent Advocacy Network is a series of 60-90 minute monthly facilitated virtual sessions established to provide psychosocial and community support to families affected by a vascular birthmark, anomaly, and/or related syndrome and to explore affected family’s needs. Hosted by Corinne Barinaga, Chair of the VBF Board of Directors and Director of Patient Advocacy, this series explores a different topic each month beyond diagnosis and treatment options. Featuring activities, special guest co-hosts, and tools to equip you in this birthmark journey, attendees are encourage to turn on their cameras and microphones and participate in the conversation.
We invite parents to join even if they are not needing answers. You might have the answer through experience to help others.
Interested in attending? Email firstname.lastname@example.org to join our list.
Wednesday, February 24, 1 pm EST – Parental Stress
Sunday, March 21, 4 pm EST – How to explain to your child about their birthmark and sibling dynamics
Wednesday, April 14, 6 pm EST – To Treat or Not to Treat: Accepting Your Choice
Sunday, May 23, 5 pm EST – What Does the Future Hold for My Child?: A PAN Panel with Adults Living with Birthmarks
Wednesday, June 16, 12 pm EST – Advocating for Your Child with Dr. Linda Rozell-Shannon
Tuesday, August 3, 11 am ET – Preparing to Send My Child to School with Leslie Graff, M.S., C.C.L.S.
Sunday, September 26, 7 pm ET – Living with a Vascular Birthmark
Corinne Barinaga has a BA in Communications and Advertising. She lives in the Seattle, Washington area with her husband and four boys. Their son, Nicholas, had a large segmental hemangioma. Corinne’s quest to learn about her son’s condition resulted in her becoming the manager of the MSN Vascular Birthmarks Support Group. She is a staunch advocate for parents. Her mission is to educate the public and physicians about the latest information concerning the diagnosis and management of vascular birthmarks. She is available to answer questions and direct to the appropriate physician and family resources. Corinne generously donates her time to working with families on an individual basis to address their specific needs. She can be contacted at email@example.com