Support Groups

We are here for you.

You may post questions and/or concerns on our VBF Facebook page or email us. Listed below are Facebook pages and groups that may be appropriate for the vascular birthmark type that you or a loved one has been diagnosed with. The following are some examples but do not represent an exhaustive list. You can google the name of the various vascular birthmarks/anomalies types and find many closed and open groups which encourage discussion. VBF also monitors some groups to provide information to affected individuals and families.

Additionally, we offer a variety of support programming throughout the year. Interested in learning more? Email VBF at info@birthmark.org

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The Vascular Birthmarks Foundation

Main site

• Facebook: https://www.facebook.com/VascularBirthmarksFoundation/
• Twitter: https://twitter.com/vbirthmarks
• Instagram: https://www.instagram.com/vbirthmarks/

VBF Global Ambassador Program

• Facebook: Vascular Birthmarks Foundation Global Ambassadors

Ask / Accept: Anti-Bullying Campaign

• Facebook: https://www.facebook.com/AskAccept/

Parent Advocacy Network

• Join our monthly Zoom support series: https://birthmark.org/pan/

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Others

General Support

• Birthmark Social
• Birthmark Buddies

Hemangiomas

• Hemangioma Parents Group
• Hemangioma Awareness

Port Wine Stains

• Birthmark: Port Wine Stain Family and Friends
• I Have or Know Someone with a Port Wine Stain
• Port Wine & Proud
• Port Wine Stain Superstars
• Port Wine Stain Birthmarks – To Treat or Not To Treat

Venous Malformations

• Venous Malformation Vascular Malformation Support Group
• Venous Malformation (Closed Group)

Arteriovenous Malformations

• AVM (Arteriovenous Malformation) Awareness
• Arteriovenous Malformation (AVM)

Lymphatic Malformations

• Lymphatic Malformations aka Lymphangioma, Cystic Hygroma
• Lymphatic Malformation Awareness

PHACE Syndrome

• PHACE Syndrome Community
• PHACE Syndrome Community Friends

Sturge Weber Syndrome

• Sturge Weber Awareness
• Sturge Weber Syndrome Community

Klippel Trenaunay Syndrome

• Klippel Trenaunay Weber Syndrome (KTWS) Support Group
• Klippel Trenaunay (KTS) Discussion Group

CMTC Cutis Marmorata Telangiectasia Congenita

• Cutis marmorata telangiectasia congenita

MLT/CVAT – Multifocal
Lymphangioendotheliomatosis with Thrombocytopenia

• Parents and Loved ones of MLT/CVAT kids