My daughter Ruby, had several hemangiomas her largest one being an internal one near her temple. It wasn’t discovered until she was 8 months old. I reached out on the hemangioma parent group and Dr. Linda reached out to me and got me touch with Jody Lee here in Michigan. Because of these wonderful ladies Ruby was seen urgently by dermatologists and started on propranolol. She has been on it for 15 months and all of her hemangiomas shrunk! She was in OT for 10 months due to issues with her tongue, lip and cheek muscles from her birthmark. She recently graduated OT and is weaning off propranolol!
Because of Dr. Linda and the VBF I found a passion again! I became a Global Ambassador to help spread awareness and fundraising for vascular birthmarks. I then joined the Global Ambassador council and am the leader of the fundraising committee! In August I was asked to be a board member. I’m just so truly grateful for the VBF and birthmark community!