Dr. Linda Rozell-Shannon, PhD President and Founder
The Brian C. Weber Memorial Travel Fund was established by the parents of Brian Weber to honor his courageous life. Brian died at the age of 38 on August 11, 2014. Brian lived his entire life with the complications associated with Klippel-Trenaunay and Parks-Weber Syndrome (KTS), a debilitating vascular condition that affects limbs, tissue and bone. For many years, Brian remained undiagnosed and suffered complications from inappropriate interventions. While accurate information about KTS is still not widely disseminated, there is more available everyday.
In honor of Brian’s life, a fund supported by Brian’s family and friends will be administered through the Vascular Birthmarks Foundation to assist families affected by KTS for travel expenses related to the diagnosis and/or treatment of KTS. We aim to enable sufferers to actively seek out experts who can help with early diagnosis and better management of their particular condition, and guide them through to a productive and fulfilling life.
Each award is limited to $500 per family and must be used towards travel to/from a provider or facility seeking a possible diagnosis and/or treatment for Klippel-Trenaunay Syndrome.
To apply for travel assistance from this fund, please click to download the application.
Review of a completed application generally takes six to eight weeks. A submitted application is not a guarantee of receiving financial assistance. Funds are limited and based on eligibility and availability. All information will be held strictly confidential. We are unable to process incomplete applications.
To request or return an application, please contact:
Vascular Birthmarks Foundation
ATTN: Weber Memorial Travel Fund
PO Box 106, Latham, NY, 12110
You may also CONTACT US or call Board Member Carla Mannix at 610-301-4522 if you have any questions.
If you would like to donate to this travel assistance fund, please donate here. Be sure to designate it to the Brian Weber Memorial Travel Fund. Your contributions are fully tax-deductible. Thank you for helping families with KTS receive the care they deserve.
The Vascular Birthmarks Foundation is a registered 501(c)(3) non-profit organization. Federal Tax ID: 16-1515227.