VBF Global Ambassadors are a global network of advocates who are working together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks community. In most cases, these are not medical professionals. However, many are either themselves an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal story.
If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help you identify a Parent or Adult Reps who has volunteered to provide personal support to other patients and families based on their own unique experiences.
To become a VBF Global Ambassador follow this link to register now or contact Scott Cupples, manager of the VBF Global Ambassador Program.
I have lived my entire life with an untreated port wine stain vascular birthmark that covers most of my left arm and shoulder. When I was younger, I struggled with the insecurity that comes with being “different” than most. However, I have come to embrace who I am and I am looking forward to helping others who can relate to my situation. I am an active duty officer in the US Navy, currently stationed in Omaha, Nebraska.
I was born with a port wine stain covering my scalp, part of my face and ear, chest, upper back and neck, both arms and hands, back of my lower left leg and foot and top of my right leg.
Kelsey Mueller was born with a very large hemangioma which covered her left arm completely from fingertips to chest, neck and shoulder. At the age of two she underwent her first skin graph to close some of the ulcerated areas and release some of the contractures of her elbow and armpit hoping get full range of motion in her arm. The doctors had taken skin from her lower back to use for the skin grafts. Throughout her child hood she went through multiple skin graphs and other surgeries just about every 2-3 years until now to help straighten her arm that has become restricted by scar tissue and the contractures from the past. Many people think that she was burned because of the skin grafts; some even argue that she is lying to them when she says it is her birthmark even to this day. She has found herself having over 30 surgeries and she will need more surgeries in the future and still does not have much range of motion in her arm, but uses these struggles as a platform to raise awareness to vascular birthmarks and the effects they have on people both mentally and physically and continues to cherishes every moment she gets to spend with her daughter and gets to be blessed with the life she has now and raises awareness as much as she can.
Dr. Waner was our saving grace when every doctor in our area turned us away with no answers! We were blessed with amazing care, answers and the best surgery team we could imagine! Kansas to New York was worth every minute and mile!
My name is Ken, from the Philippines. I was born with a PWS that is covering the right side of my face. Growing up I experienced unusual stares and questions like, ‘Did you meet an accident before,’ or ‘Did you get burnt?’ Good thing I have the strongest support system from my family. I can vividly recall when I was a kid, my Dad would always bring me to his business trips so people will get accustomed to someone who has a huge birthmark on the face. That boosted my morale and confidence since got to meet different types of people. I never had any treatment since I was born, as there was no access to it in my country. It was my ex-GF who did some research on the complications behind it which led me to the Laser and Skin Surgery of NY. I went there for consultation but they treated me for free (the Lord works in mysterious ways and used Dr. Geronemus to help a lot of people with vascular anomalies). I am now on my 20th laser treatment. Through VBF, I would like create awareness that the Family plays a big role in shaping up your kid’s self confidence. I would also like to emphasize that being different is beautiful and all you have to do is embrace your uniqueness.
This is my little brother he was born with that birthmark and its growing its outside on his face and inside on his teeth up to his neck inside i feel sorry for him because it smell most of the time i hope one day he can have better life he is such a humble boy he is now 24 years when we go somewhere people stare at him i havnt seen anyone have his kind of birthmark i am the sister who love my brother so much that i cane across and find this so i do this for him
I surprised many when I came into this world born with a Port Wine Stain Birthmark. There was simply no knowledge of why, or how to treat. With the exception of experimental argon laser at a young age, my birthmark grew and thickened for many years until I was 36 years old when I had the first surgery to debulk my birthmark. The Vascular Birthmarks Foundation does an incredible job bringing much needed awareness to the world!
Hello everyone I’m Kira! I have a huge PWS birthmark on my face and I’m very proud of who I am today! Things haven’t always been easy but you learn to love who you are! I have the best family and friends and I wouldn’t change who I am for anything!! I love giving advice and being there for everyone! Also being the best I can be everyday giving it 100%! Thank you so much for accepting me into this!
Camila was born on April 26th and in the weeks to follow her Hemangioma developed under her eye. We feared it would block her sight. Thankfully with the knowledge I gained from the VBF and the hemangioma parents Facebook groups I knew to act fast and get her treatment. The growth has stopped and I’m confident it will be gone within 15 months with no side effects.
I firmly believe that each of us who is born “different” was made that way for a very special purpose! My port wine stain birthmark and Sturge-Weber Syndrome led me to become a therapist who works with kids with autism. Being different means I can more easily understand others who are different.
My biggest struggle has been learning to love myself, and to care less about the judgment of others based on my appearance. I love to support others in learning to love themselves more as well.