The Vascular Birthmarks Foundation Dr. Linda Rozell-Shannon, PhD President and Founder

VBF Global Ambassadors are a global network of advocates who work together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks communities. In most cases, these are not medical professionals. Many are an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal stories.

Search this page to find someone local – or with whom you’d like to connect – to learn more about:

  • Physicians in your area who can help to medically manage vascular birthmark cases
  • Their experience living with a vascular birthmark
  • VBF’s Day/Month of Awareness, Put on Your Birthmark, Buddy Booby Read-Along, Ask/Accept anti-bullying, and other birthmark advocacy and awareness programs
  • Fundraising events in support of VBF
  • And much more!

If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help find personal support from other patients and families based on their own unique experiences.

AWARENESS

RESOURCES

CONTACT

  • Want to learn more about the VBF Global Ambassadors? For any questions or feedback, please contact:

Scott Cupples
Director, VBF Global Ambassador Program
ambassador@birthmark.org

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Jasmine Corrie, Canada, Manitoba

My sons name is Onyx and he was born with Klippel Trenaunay syndrome. When he was born, I realized he had a port wine stain and it didn’t concern me, but little did I know the complications that can bring. It took a few months for him to be diagnosed, as we are from a small city in Canada.

At first, we really took it hard. We knew nothing about the condition, or anyone who has had it, since it’s so rare. Social media has been such a blessing to us. We have befriended and spoke with multiple people and parents of children with KTS. Seeing how their children are thriving, even through the ups and downs of treatment, gave us hope for our sons future. Social media gave us a community of people that give us support, advice and friendship and we are so thankful. We strive to bring more awareness to KTS, in the hope that it will become more well known. Hoping in the future, there will be increased treatments, more educated doctors and one day, a cure.

Jayden Torres, United States (US), Nevada

Jayden has Sturge W.S with Glaucoma (Baerveldt Shunt) on right eye ,epilepsy and he has already been treated with 3 surgeries for hemangioma. He is 10 years old and we started with laser surgery in New York, NY.

Jaysa Mannix, United States (US), Pennsylvania

I deal with multiple venous malformations in both my legs and even in my hand. The one in my knee causes constant tendonitis so I understand when kids have chronic, hidden pain that flares up. I also have the genetic PTEN Hamartoma Syndrome which likely caused my VMs.

Every year I support VBF’s mission by donating my birthday money and the #PutOnYourBirthmark campaign to help raise awareness. I hope one day to become VBF’s teen advocate.

Jaysa Mannix,

I deal with multiple venous malformations in both my legs and even in my hand. The one in my knee causes constant tendonitis so I understand when kids have chronic, hidden pain that flares up. I also have the genetic PTEN Hamartoma Syndrome which likely caused my VMs.

Every year I support VBF’s mission by donating my birthday money and the #PutOnYourBirthmark campaign to help raise awareness. I hope one day to become VBF’s teen advocate.

Jean Soares, United States (US), Nebraska

I have a PWS that covers up about half of my legs. I started laser when I was 16, and again in my 30s. I realized I am this way and I should learn to come to terms with it. I work on coming to terms with it every day.

Jed Maguire, Australia, Victoria

Hi my name’s Jed, I’m from Australia, I have a birthmark on my right side of my face which runs up through to the top of my head and i had it well, since i was born! I had lazsor treatment to reduce the brightness off my birthmark since birth untill i was about 7-8 yrs then i learn that it would never “go away” i simply embrace it and live with it, you get some stares some comments to, ive learnt just to ignore it over the years. I’m now 17yrs old and i am currently finishing school and aspire to become a fisheries officer in the future. I want to spread my thoughts and story of my birthmark and hopefully become an ambassador for you guys! Would be so awesome to have a community like this to be apart of. So glad there is something like this out there love your work guys!

Jeffery Bergen, United States (US), All States

Jeff Bergen is a former Navy Corpsman who completed 8 years of active service and was honorably discharged. After the Navy he went to nursing school and later went on to attain a Master’s Degree in Nursing. As a Registered Nurse, he has worked in infectious disease and oncology nursing, and was a hospital epidemiology nurse. He is certified in infection control and health care quality. He is currently the manager of the Office of Licensure, Accreditation & Regulation at Cedars-Sinai Medical Center in Los Angeles, CA. He is also pursuing his PhD in Nursing through The Catholic University of America. Jeff is an established patient at the Beckman Laser Institute where receives treatment for his portwine stain.

Jenny Foulds, United Kingdom (UK)

Hey, I’m Jenny, a 33-year-old wife and mum of two living in England. I have a port-wine stain birthmark on my right cheek, upper lip, and nose. I have had multiple laser surgeries as a child which removed the sections covering my forehead, whilst lightening and breaking up the other patches remaining today. I’m a wedding and lifestyle photographer and my passion is to celebrate people’s individuality and quirks. It’s taken me a long time to accept my PWS, and I’m only now realizing how much I love this part of me.

Instagram: @beautifully_birthmarked

Jeremy Lamb, United States (US), North Carolina

I’m 17 years old going into my senior year of high school. I’ve had plenty of procedures just like other patients and would like to help people similar to me feel comfortable and help mentor them!

Jessica Bird, United States (US), New York

My daughter Nevaeh (8) was born with a Port Wine Stain birthmark on the left side of her beautiful face. Nevaeh is a happy, healthy and outgoing girl that loves Cheerleading, dancing and being with her friends and family. She doesn’t mind talking about her birthmark with others. Every year, she brings heart stickers to school on May 15 so her class can Rock Your Birthmark with her! She also had a story on Inside Edition when she was 5 years old about her doll and their matching birthmarks. As her mother, I enjoy teaching others about birthmarks and encouraging children to have positive words and positive self-esteem. I’m proud to be A Global Ambassador.