VBF Global Ambassadors are a global network of advocates who are working together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks community. In most cases, these are not medical professionals. However, many are either themselves an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal story.
If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help you identify a Parent or Adult Reps who has volunteered to provide personal support to other patients and families based on their own unique experiences.
To become a VBF Global Ambassador follow this link to register now or contact Scott Cupples, manager of the VBF Global Ambassador Program.
My name is Vanessa and I was born with a Port Wine Stain birthmark on both legs, my right arm and parts of my torso. Due to being misdiagnosed at birth (my parents were told it would fade over time), I did not start laser treatments until I was six years old. I received over 75 treatments within 6-7 years with only small improvements. After developing skin ulcers (and ultimately had a skin graft) from severe scarring on my shins – I decided to stop all treatment. However, a few years ago, I began laser treatments once again and have seen some great results!
Growing up, I dealt with low self-esteem and so many insecurities. Now, as an adult, I am learning to love my birthmark and have found strength and positivity in my uniqueness. I am so excited to help raise awareness for VBF and vascular birthmarks!
Growing up with a port wine stain was never easy. It was confusing and challenging, as I didn’t quite understand why I was different or why this red patch on my neck and cheek became darker every year and grew in size. I received laser treatments up until I was 10, then stopped treatment for 10 years. My port wine stain became hypertrophic, growing in size on my cheek and thickening. After seeking treatment again, I discovered the VBF and Dr. Gregory Levitin. This discovery and doctor have changed my life. One thing that must be stressed is monitor changes in your PWS and maintenance is so so important.
Hello, my name Yajaira Morales, my nickname is Yaya, and I was born with a birthmark that covers my whole left side of my body. It was very difficult in school with a lot of bullying. Growing up was very hard for me, but over the years I learned to love myself and who I am. Now I am happily married, have two wonderful daughters, and a career as a veterinary technician. My new passion now is to help others like me to tell them it going to be ok, and that we are beautiful and much more than our birthmarks.
I am Zainab From Egypt. I was born with a Port Wine Stain birthmark on my face, and with a swollen lower lip. People always thought that maybe my mark was due to an accident or burning, and always asked me why my lip was so big. After telling them that it is a gift from God and he create me like that and I love his creation of me, they changed their minds and concentrated on my personality. My birthmark doesn’t prevent me from doing whatever I want to do, and it makes me a lovely person. Thank you to VBF, for helping me understand my birthmark, I’m really happy to spread the awareness as an Ambassador. VBF gives hope to me to treat my birthmark, without fearing of side effect distortions.