The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

VBF Global Ambassadors are a global network of advocates who work together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks communities. In most cases, these are not medical professionals. Many are an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal stories.

Search this page to find someone local – or with whom you’d like to connect – to learn more about:

  • Physicians in your area who can help to medically manage vascular birthmark cases
  • Their experience living with a vascular birthmark
  • VBF’s Day/Month of Awareness, Put on Your Birthmark, Buddy Booby Read-Along, Ask/Accept anti-bullying, and other birthmark advocacy and awareness programs
  • Fundraising events in support of VBF – create a Birthday Fundraiser and get some awesome VBF Global Ambassador swag!
  • And much more!

If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help find personal support from other patients and families based on their own unique experiences.

NEWSLETTERS

AWARENESS

RESOURCES

CONTACT

  • Want to learn more about the VBF Global Ambassadors? For any questions or feedback, please contact:

Scott Cupples
Director, VBF Global Ambassador Program
ambassador@birthmark.org

Search Our Ambassadors

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Jaysa Mannix, United States (US), Pennsylvania

I deal with multiple venous malformations in both my legs and even in my hand. The one in my knee causes constant tendonitis so I understand when kids have chronic, hidden pain that flares up. I also have the genetic PTEN Hamartoma Syndrome which likely caused my VMs.

Every year I support VBF’s mission by donating my birthday money and the #PutOnYourBirthmark campaign to help raise awareness. I hope one day to become VBF’s teen advocate.

Jaysa Mannix,

I deal with multiple venous malformations in both my legs and even in my hand. The one in my knee causes constant tendonitis so I understand when kids have chronic, hidden pain that flares up. I also have the genetic PTEN Hamartoma Syndrome which likely caused my VMs.

Every year I support VBF’s mission by donating my birthday money and the #PutOnYourBirthmark campaign to help raise awareness. I hope one day to become VBF’s teen advocate.

Jean Soares, United States (US), Nebraska

I have a PWS that covers up about half of my legs. I started laser when I was 16, and again in my 30s. I realized I am this way and I should learn to come to terms with it. I work on coming to terms with it every day.

Jeffery Bergen, United States (US), All States

Jeff Bergen is a former Navy Corpsman who completed 8 years of active service and was honorably discharged. After the Navy he went to nursing school and later went on to attain a Master’s Degree in Nursing. As a Registered Nurse, he has worked in infectious disease and oncology nursing, and was a hospital epidemiology nurse. He is certified in infection control and health care quality. He is currently the manager of the Office of Licensure, Accreditation & Regulation at Cedars-Sinai Medical Center in Los Angeles, CA. He is also pursuing his PhD in Nursing through The Catholic University of America. Jeff is an established patient at the Beckman Laser Institute where receives treatment for his portwine stain.

Jennifer Mclendon, United States (US), Indiana

My daughter started seeing her team of physicians at 7 days old. We have been on this journey, ever since. She has been diagnosed with capillary venous lymphatic malformation.

Jenny Foulds, United Kingdom (UK)

Hey, I’m Jenny, a 33-year-old wife and mum of two living in England. I have a port-wine stain birthmark on my right cheek, upper lip, and nose. I have had multiple laser surgeries as a child which removed the sections covering my forehead, whilst lightening and breaking up the other patches remaining today. I’m a wedding and lifestyle photographer and my passion is to celebrate people’s individuality and quirks. It’s taken me a long time to accept my PWS, and I’m only now realizing how much I love this part of me.

Instagram: @beautifully_birthmarked

Jeremy Lamb, United States (US), North Carolina

I’m 17 years old going into my senior year of high school. I’ve had plenty of procedures just like other patients and would like to help people similar to me feel comfortable and help mentor them!

Jessica Bird, United States (US), New York

My daughter Nevaeh (8) was born with a Port Wine Stain birthmark on the left side of her beautiful face. Nevaeh is a happy, healthy and outgoing girl that loves Cheerleading, dancing and being with her friends and family. She doesn’t mind talking about her birthmark with others. Every year, she brings heart stickers to school on May 15 so her class can Rock Your Birthmark with her! She also had a story on Inside Edition when she was 5 years old about her doll and their matching birthmarks. As her mother, I enjoy teaching others about birthmarks and encouraging children to have positive words and positive self-esteem. I’m proud to be A Global Ambassador.

Jessica Sansonese, United States (US), New Jersey

When Kayla was born, the doctor first told us that the right side of her face was bruised during birth, but while he was checking her vitals he realized that it was not a bruise and then informed us that it was a Port Wine Stain. We did not know anything about Port Wine Stains and quickly started doing research; which was very overwhelming. Luckily we were put in touch with some great doctors who walked us through every thing that we would need to do (MRI at 10 days old, 6 month ophthalmology appointments and laser treatments every 3-4 weeks). During her first dermatology appointment we also discovered she had two hemangiomas, in addition to her Port Wine Stain. The VBF community is amazing, and supportive of everyone. I learned so much and hope to spread the knowledge and experience we’ve had over the last 2 years with others! We tell Kayla every day that she is beautiful and strong, and I want to make sure every one feels that way!

Jill Campbell, United States (US), Iowa

I am a mother of a beautiful 2 year old that has a PWS on the corner of her left eye that stretches 2 inches into her scalp. We found out at 1 month that she has glaucoma in that eye, which gives her the Diagnosis of Sturge Weber Syndrome Type 2. We feel lucky to have found out at birth about her PWS as I know many others wait and wait to know more about their diagnosis. She’s had 5 laser treatments and it has been a success. She is on Timolol twice a day for her glaucoma. She has also had 2 MRI’s currently no issues with the brain. I am more than willing to talk to anyone with questions. I love my daughter and would share our journey with anyone.