VBF Global Ambassadors are a global network of advocates who are working together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks community. In most cases, these are not medical professionals. However, many are either themselves an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal story.
If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help you identify a Parent or Adult Reps who has volunteered to provide personal support to other patients and families based on their own unique experiences.
To become a VBF Global Ambassador follow this link to register now or contact Scott Cupples, manager of the VBF Global Ambassador Program.
I’m Lucy, I’m 15, and I have a port wine stain, Klippel-Trenaunay Syndrome and hemihyperplasia. One side of my body grows faster than the other, I have weak muscles, bones and immune system and I’ve had over 40 surgeries since I was 10 months old. I’m a dancer and don’t let my conditions stop me from doing anything.
Hi! I’m Tammy Morris. My daughter Vivienne is 2.5 years old and was born with a port wine stain on the left side of her face. When she was born I initially didn’t realize it was a port wine stain – the pediatrician was the one to confirm it. New mother emotions had me very worried about how others would treat her and how she would feel about herself. I was quick to search port wine stains on the internet, and one of the first sites I found was www.birthmark.org. I read about laser treatments on the stain and how it helped many others. Before I could even say anything about treatment, our regular pediatrician had been in contact with a local pediatric dermatologist, and they recommend laser treatments. Vivienne had her first treatment when she was only 2 months old. She has had regular treatments, scans and ophthalmology check-ups. We are happy to report, at this time that no other condition have been detected in conjunction with her stain. I am so thankful for all that VBF does. We love helping others by spreading awareness, and VBF has been a great tool in raising awareness with those around us.
Hi! I’m Tammy Morris. My daughter Vivienne is 2.5 years old and was born with a port wine stain on the left side of her face. When she was born I initially didn’t realize it was a port wine stain – the pediatrician was the one to confirm it. New mother emotions had me very worried about how others would treat her and how she would feel about herself. I was quick to search port wine stains on the internet, one of the first sites I found was The VBF website. I read about laser treatments on the stain and how it helped many others. Before I could even say anything about treatment, our regular pediatrician had been in contact with a local pediatric dermatologist. Vivienne had her first laser treatment when she was only 2 months old. Vivienne has had regular treatments, scans and ophthalmology check-ups. We are happy to report, at this time, nothing more has been detected in conjunction with her stain.
I am so thankful for all the good The VBF does. We love helping others be aware and VBF has been a great tool in raising awareness with those around us.
I’m 42 years old, and my PWS birthmarks cover 75% of my body. I used to struggle with having them until I was 14. Since then I’ve embraced them. I love standing out, and letting people know I don’t care. My kids friends think I’m awesome. They love coming over and hanging out with me. I joined the Ambassadors to let people know that it is okay to be different.
Growing up with a birthmark wasn’t easy. I was teased a lot, and it made me self-conscious. Over the years, I grew to love my birthmark which plays a big role in becoming an Ambassador. I want to show others who have vascular birthmarks that it’s okay to be different, and to be proud of what makes us unique!
This is Jersie who just turned 5 years old! She was born with a vascular hemangioma on her right shoulder. Although she doesn’t quite understand what is on her shoulder, she does get quite upset when people make rude comments about it. Our hope is to educate people. We welcome positive questions instead of comments like ‘ewe that’s gross,’ or ‘why don’t you just remove it,’ or ‘It’s a shame you’d wear a tank top on her considering it could so easily be covered.’ Our hope for Jersie is that she never feels ashamed or bullied because of her vascular birthmark.
My daughter (Chloe) was born with various venous malformations including a large PWS across her chest and right arm. We’ve done the best we can with our doctors at Primary Children’s Hospital, and Chloe is doing well despite her challenges. After numerous rounds of sclerotherapy, she’s left with microcystic hygromas and other various venous malformations. I’m thrilled to find this foundation and hope to connect with others!
My name is Vanessa and my daughter, Loriana, has a PWS on the right side of her face. Being a first-time mom can be overwhelming on its own, but spending the first sleepless week of my baby’s life researching everything I could about vascular birthmarks made it even more difficult. Thankfully it did not take long to find the VBF and many support groups on Facebook. Every person I communicated with made my PWS journey a little more manageable. While I’m no expert, and still learning more everyday, I would love to give back to the vascular birthmark community in any way I can. I’ve started a Facebook group for families in Ontario and am looking forward to connecting with others in my area.
My name is Vanessa and I was born with a Port Wine Stain birthmark on both legs, my right arm and parts of my torso. Due to being misdiagnosed at birth (my parents were told it would fade over time), I did not start laser treatments until I was six years old. I received over 75 treatments within 6-7 years with only small improvements. After developing skin ulcers (and ultimately had a skin graft) from severe scarring on my shins – I decided to stop all treatment. However, a few years ago, I began laser treatments once again and have seen some great results!
Growing up, I dealt with low self-esteem and so many insecurities. Now, as an adult, I am learning to love my birthmark and have found strength and positivity in my uniqueness. I am so excited to help raise awareness for VBF and vascular birthmarks!