VBF Global Ambassadors are a global network of advocates who are working together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks community. In most cases, these are not medical professionals. However, many are either themselves an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal story.
If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help you identify a Parent or Adult Reps who has volunteered to provide personal support to other patients and families based on their own unique experiences.
To become a VBF Global Ambassador follow this link to register now or contact Scott Cupples, manager of the VBF Global Ambassador Program.
Growing up with a port wine stain was never easy. It was confusing and challenging, as I didn’t quite understand why I was different or why this red patch on my neck and cheek became darker every year and grew in size. I received laser treatments up until I was 10, then halted treatment for 10 years. My port wine stain became hypertrophic, growing in size on my cheek and thickening. After seeking treatment again, I discovered the VBF and Dr. Gregory Levitin. This discovery and doctor have changed my life. One thing that must be stressed is monitor changes in your PWS and maintenance is so so important.
I was born 26 years ago with a port wine stain on my face. As a kid I’ve experienced a lot of bullying which caused me to isolate myself a lot from others even while hiding my birthmark under the make-up. I’ve been covering it very precisely and have been very stressful about it. Several laser treatments I received as a teenager gave no visible results.
For a while, I was battling depression and anxiety. A year ago, I decided to go in public without makeup for the first time in 14 years. I felt amazing! I was showing my birthmark to more and more people a started to openly talk about it. I’ve also started meeting people with vascular birthmarks from my country. Myself and others here in Poland feel spreading the awareness and tolerance is extremely needed in regards to vascular birthmarks!
Hello, my name Yajaira Morales, my nickname is Yaya, and I was born with a birthmark that covers my whole left side of my body. It was very difficult in school with a lot of bullying. Growing up was very hard for me, but over the years I learned to love myself and who I am. Now I am happily married, have two wonderful daughters, and a career as a veterinary technician. My new passion now is to help others like me to tell them it going to be ok, and that we are beautiful and much more than our birthmarks.
I am Zainab From Egypt. I was born with a Port Wine Stain birthmark on my face, and with a swollen lower lip. People always thought that maybe my mark was due to an accident or burning, and always asked me why my lip was so big. After telling them that it is a gift from God and he create me like that and I love his creation of me, they changed their minds and concentrated on my personality. My birthmark doesn’t prevent me from doing whatever I want to do, and it makes me a lovely person. Thank you to VBF, for helping me understand my birthmark, I’m really happy to spread the awareness as an Ambassador. VBF gives hope to me to treat my birthmark, without fearing of side effect distortions.