The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

VBF Global Ambassadors are a global network of advocates who work together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks communities. In most cases, these are not medical professionals. Many are an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal stories.

Search this page to find someone local – or with whom you’d like to connect – to learn more about:

  • Physicians in your area who can help to medically manage vascular birthmark cases
  • Their experience living with a vascular birthmark
  • VBF’s Day/Month of Awareness, Put on Your Birthmark, Buddy Booby Read-Along, Ask/Accept anti-bullying, and other birthmark advocacy and awareness programs
  • Fundraising events in support of VBF – create a Birthday Fundraiser and get some awesome VBF Global Ambassador swag!
  • And much more!

If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help find personal support from other patients and families based on their own unique experiences.

NEWSLETTERS

AWARENESS

RESOURCES

CONTACT

  • Want to learn more about the VBF Global Ambassadors? For any questions or feedback, please contact:

Scott Cupples
Director, VBF Global Ambassador Program
ambassador@birthmark.org

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Maria “Cathy” Hernandez, United States (US), Utah

On June 17, 2020 I was blessed with our beautiful Xander. His birthmark was not a conversational piece during our hospital stay (maybe due to our COVID story) but his siblings loved it and said he was Prince Zuko (Last Air Bender reference).

On our 2 month check up appointment, I mentioned a pump on his head on the same side as his PWS. A CT scan later we were informed that our baby boy was diagnosed with Sturge-Weber Syndrome. As you can imagine, confusion set in but here we are learning and supporting just the same way you all are.

Maria José Flores Rojas, Mexico

My daughter’s name is Maria Jose, and I’m known as Majo. My birthmark is on my forehead, between my eyebrows. I have gone through many procedures, laser, and medications. Even so, it hasn’t impeded me from having a normal childhood and being full of happiness. At my three years of age, I’ve learned to identify my daughter’s hemangioma as part of her, which doesn’t take away her  happiness, but makes her unique.

Mi nombre es María José, me conocen como MaJo, mi marca de nacimiento se ubica en mi frente, entre mis cejas, he pasado por largos procesos, láser, medicamento y observaciones largas, no obstante esto no ha impedido que mi niñez sea de lo más normal y llena de alegría, a mis casi tres años he aprendido a identificar mi hemangioma como parte de mí, ya que no me impide ser feliz, sino que me hace unica.

Marianna Bowering, Australia, South Australia

Hello, My name is Marianna. On the 6th of May, 2018, I gave birth to my first baby, Angelica Rose. Angelica was born with a Port Wine Stain that spreads across both sides of her face. My experience as a beauty therapist gave me quite an understanding of the skin condition itself. I also noticed she has a stork bite on the back of her head, as well as a Mongolian spot on the back of her head. At the hospital, they made me aware of the medical conditions connected to PWS, as I didn’t have as much knowledge before her birth. So far, Angelica is clear of SWS and Glaucoma, and is due to start laser treatments in July of 2019. My mission is to continue to educate others about vascular birthmarks, the importance of treatment and raising awareness.

Marina Mullenax, United States (US), Texas

Hi. I am Marina. I have PWS on the left side of my body. (Arm, chest, and side) My stain is flat but looks like I have bruises or a rash. People tend to stare..so I try to educate them.

Marisa Bell, United States (US), New York

My sweet baby girl Claire was born with a port wine stain on her right cheek, eye lid, and scalp….she has had 5 laser treatments in NYC. She is under the care of Dr. Theresa O. She is a vibrant little lady who loves her siblings very very much. She is just 18 months old. We did not continue with testing for other complications as she is hitting every milestone beautiful. I’d love to support other families in my area as well as have them support us. It’s been a long year and half as we fear bullying as she grows up.

Marjorie Houghton, United States (US), Texas

Hello, I am the mother of a beautiful birthmark stud. My son Christian was born with a port wine stain birthmark on the left side of his face (v1-v3). His laser surgeries started at 8 weeks old. He is now 2 years old and has had 26 laser surgeries to date.  This journey has been a whirlwind of emotions. From rude questions to being accused of abusing Christian because of his super hero power dots the day after treatment. My goal is to spread awareness and help others gracefully handle the rude ignorant people out there in regards to PWS birthmarks.

Mayondi Jayasundara, Sri Lanka

I’m Mayondi Jayasundara (29years old) from Sri Lanka. When I was a little child I didn’t have much bad experience with my birthmark. When the time came for me to start college life, I felt so different from my colleagues. Most of the girls had boyfriends, and no one interested in me. Time went on, and after 13 yrs of school life I became a graduate at the University of Colombo as I completed my Masters Degree last year. Very recently, I married a very handsome gentlemen. My parents are always backing me when something bad happened in my life because of my birthmark. One year ago, I did my first surgery to balance my bulky lip due to this birthmark. I’m looking for laser treatments in other counties since laser treatment professionals are not available in Sri Lanka.

Anyhow today I’m a happy woman.

Meagan Wight, Canada, Alberta

Dominic was born prematurely and covered in hundreds of Hemangioma. In the NICU they discovered that he had a ruptered AVM in his brain and was in high output cardiac failure from a hepatic AVM. He is a fighter and has fought from day one.

Meagan Wight, Canada, Alberta

My son Dominic was born prematurely and covered in hundreds of Hemangioma. In the NICU they discovered that he had a ruptured AVM in his brain and was in high output cardiac failure from a hepatic AVM. He is a fighter and has fought from day one.

Meg Hasch, United States (US), Indiana

Hi, my name is Meg Hasch. I am a sophomore in high school from Indianapolis, Indiana; I was born with a vascular malformation all down the outside of my right leg to my waist to the tip of my toes. Throughout my life I have experienced everything from people wishing they were me to people making fun of my difference. It is not easy growing up with a purple leg, mainly because its pretty noticeable and it makes me different. Not many people like different. My goal is to work to bring awareness to vascular malformations and birthmarks alike as well as work with kids who may be going through what I went through, ones who will grow up feeling the same. It wasn’t my choice to be born this way, but I wouldn’t change a thing.