VBF Global Ambassadors are a global network of advocates who work together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks communities. In most cases, these are not medical professionals. Many are an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal stories.
If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help find personal support from other patients and families based on their own unique experiences.
Director, VBF Global Ambassador Program
I am Scott Cupples, Global Ambassador Program Manager. I have lived my entire life with an untreated Port Wine Stain vascular birthmark until starting treatments in 2018 (thanks to VBF). Of course there have been times where my birthmark has made me feel insecure, but I’ve always had the mentality that it will never keep me from accomplishing what I want in life. In addition to my role at VBF, I work in corporate finance and serve in the Air National Guard as a First Sergeant. My goal with VBF is to help as many families as possible who are affected by vascular birthmarks, and to continuously spread awareness.
My 16 year old son DeVion was born with Klippel Trenaunay Syndrome to his upper body. His younger years were full of constant hospitalizatikns and surgeries, amputations, blood transfusions, ect. We have been blessed in the past with help through the VBF and have continuously helped others as well in our journey!
My son Michael has a Port Wine Stain birthmark. He has received many laser treatments since he was 3 months old. I would like to help spread as much awareness about it as I can, which will eventually lead to more acceptance. When I speak about my son and his birthmark it is somewhat like therapy for me. It has been very emotional. I want to help anyone going through the same feelings as I am. I made a personalized book all about Michael and read it to his classmates before a laser surgery. It has been so helpful. Please contact me and I would love to share it with you!
Hello! My name is Shelby & I am the mother of Fallon! Fallon was born with an infantile hemangioma – which is why she has the nickname “Strawberry Shortcake!”. No one in our family has ever had a hemangioma (that we know of!) and we were unsure of what is was and how to care for it. After speaking with her specialist at a children’s hospital we found out some amazing facts about hemangiomas! Now, we spread awareness around our community and have made new friends that have or have children with hemangiomas! We carry pamphlets of information & hand them out to those who stare or ask questions! We love teaching about them!
I was born with a PWS on the right side of my face. I have had several laser treatments, but stopped having them regularly when I was younger. It’s always made me unique and I wouldn’t trade it!
I was born with my port wine stain. About 2 years ago I developed a lump under it, and was told it was a lipoma. Went to a general surgeon to have it removed, he refused and wanted and MRI. At that point I found out I had an AVM. I have had it embolized 3 time with black onyx, but it kept growing back.
At this point I have had 2 ethanol embolization with Dr. Yakes. It definitely has not been easy, but I find great strength in my kids. The amount of pain I live with daily is unreal. I never imagined it would develop into something else. I have always been asked about abuse and people saying that I have a red bloch on my back, then having to explain that it’s a port wine stain and I was born with it.
Hi my name is Stacy and I am 32 years old and lived with port wine stain my entire life. I suffer from earlier morning flare ups and emotional swelling, unaligned spaced out teeth, bad gums on my right side. After entering the adult world I learned to embrace who I am and love the skin that I am in. Kids would make fun of me I’d shy away from the world to avoid anyone noticing that my face was not aligned or swollen on certain days. Today my goal is to reach out to every person who has PWS and tell them how beautiful they are inside and out. Nothing more matters then what is on the inside.
I am Stacy from Greece. I have a 16 year old daughter with KTS and DVT. She only had symptoms last April, unfortunately with PE. I want to help people to accept their rare disease and doctors learn about it.
I’m Lucy, I’m 15, and I have a port wine stain, Klippel-Trenaunay Syndrome and hemihyperplasia. One side of my body grows faster than the other, I have weak muscles, bones and immune system and I’ve had over 40 surgeries since I was 10 months old. I’m a dancer and don’t let my conditions stop me from doing anything.