VBF Global Ambassadors are a global network of advocates who work together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks communities. In most cases, these are not medical professionals. Many are an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal stories.
If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help find personal support from other patients and families based on their own unique experiences.
Director, VBF Global Ambassador Program
I’m Avery and I am 22 years old! I was born with KTS and have undergone a slew of management procedures in the past 22 years! I am graduating college in December and plan to attend Vet school next fall! I myself have experienced the difficulties of dealing with self image and just want to share with the world that port-wine stains are beautiful and unique!
I have a port wine stain on the left side of my face, I have had it since birth and I have had 27 operations in 10 years when I was younger. I’d like to be able to help people understand and be more aware of port wine stains and all birthmarks and I think through this I’d he able to help.
I am Batool Kaushal from India. I have lived 54 years of life handling bleeding and pain due to Arteriovenous Malformation of my Pelvis, right leg and foot. I had four surgeries before attaining the age of four. Doctors presumed it to be rectal piles and the bleeding did not stop, till I was operated for pelvic hemangiomas at the age of 18. Eight hour long surgery stopped my profuse bleeding but my leg and foot AVM continued to give me severe pain, till I found Vascular Birthmark Foundation online and approached Dr. Linda, who arranged my leg surgery at Lenox hill hospital in NYC, in 2014. I continue to get advice from AVM team of VBF. I wish to support and help children and adults with Birthmarks in India and around the globe, so that patients like me do not suffer due to lack of awareness and medical aid anywhere in India and abroad.
When my son Jeremy was born the doctors immediately noticed that he had a slight drooping on the left side of his face. As a result, he was misdiagnosed and it was only after several different visits to doctors that we found that he had a venous malformation. He’s had several treatments and is now 14 years old and going into high school and thriving.
Hi, I’m Bianca from Uruguay, and I am 18 years old. I have a PWS, and because of a lack of treatment facilities I traveled to Chile to get laser. As a child, my mother trained me how to respond when people asked me questions about my birthmark. I was bullied, called a monster, and kids even made a song about me. Even after all of that, today I see my birthmark as special and pretty, and I don’t let it bother me. Now I’m in college, and I don’t wear makeup, and can’t imagine my face without my birthmark, because it makes me, me. I hope in becoming an Ambassador, I will meet Latinos and others, to show my support like the VBF supported me. Let’s celebrate our beauty, no matter our appearance. With love – Bianca.
My name is Bianca and I was born with an angioma. I have traveled to Chile to do my laser treatments, so it is better now. All my life I have been bullied for that and now I am 18 years old and I decided not put make up on my birthmark anymore. It is hard because I feel fear about this but now I am feeling so free. I was looking on Instagram, and found pages for birthmarks and personal accounts, which makes me feel more confident. I want to say to all people that all bodies and skins are beautiful. Show who you are, you are perfect and unique the way you are.
My son Jackson was born with a port wine stain. His doctors all assured us that the likelihood of him having Sturge-Weber Syndrome was very rare due to the size of the port wine stain. He was diagnosed at 4 months after a cluster of seizures. I now know that size of a port wine stain has nothing to do with brain involvement.
I would like to become an ambassador to help spread awareness and education about PWS, as well as Sturge Weber Syndrome.
My name is Brenna, and I am 22 years old. I have a Port Wine Stain that covers a large portion of the right side of my face. So far, I have had 10 laser treatments on my birthmark and only get them as needed. It took me a long time to accept myself and my birthmark but now, I am so confident and couldn’t imagine myself without it. Of course, not everything has been easy as a result, but that’s just pushed me to do and try harder. My birthmark does not define me, but it sure has helped me become who I am today!
My daughter Kennedy was born in 2014 with Kaposiform Hemangioendothelioma, KHE with Kasabach-Merritt syndrome. She was diagnosed correctly at a month old and spent many months in the hospital on steroids and chemotherapy (vincristine). After endless tweaks to her treatment, she was finally stabilized and able to go home. She suffered with extremely low platelet counts and internal hemorrhaging until she was stabilized. Currently she is thriving with little to no medical intervention as we call her KHE dormant. We are well aware of its ability to awaken, which would require her to start treatment again. We have documented her story on Facebook at Kennedy Dailey And The Search For A Cure To KHE.
My daughter Kennedy was born with Kaposiform Hemangioendothelioma, KHE with Kasabach Merritt syndrome in 2014. She was diagnosed correctly at a month old and spent many months in the hospital on steroids and chemotherapy (vincristine). After endless little tweaks to her treatment, she was finally stabilized and able to go home. She suffered with extremely low platelet counts and internal hemorrhaging until she was stabilized. Currently she is thriving with little to no medical intervention as we call her KHE dormant. We are well aware of its ability to awaken which would require her to start treatment again. We have documented her story on Facebook at Kennedy Dailey And The Search For A Cure To KHE.