The Vascular Birthmarks Foundation

Dr. Linda Rozell-Shannon, PhD President and Founder

VBF Global Ambassadors are a global network of advocates who work together with VBF to build awareness of vascular birthmarks and funnel support to every corner of the birthmarks communities. In most cases, these are not medical professionals. Many are an adult who has or had a vascular birthmark or who has a loved one with a vascular birthmark. In the directory below, you’ll learn more about their personal stories.

Search this page to find someone local – or with whom you’d like to connect – to learn more about:

  • Physicians in your area who can help to medically manage vascular birthmark cases
  • Their experience living with a vascular birthmark
  • VBF’s Day/Month of Awareness, Put on Your Birthmark, Buddy Booby Read-Along, Ask/Accept anti-bullying, and other birthmark advocacy and awareness programs
  • Fundraising events in support of VBF – create a Birthday Fundraiser and get some awesome VBF Global Ambassador swag!
  • And much more!

If you or someone in your family has a birthmark and you’d like to speak with others who have had a similar experience, the Global Ambassadors can also help find personal support from other patients and families based on their own unique experiences.

NEWSLETTERS

AWARENESS

RESOURCES

CONTACT

  • Want to learn more about the VBF Global Ambassadors? For any questions or feedback, please contact:

Scott Cupples
Director, VBF Global Ambassador Program
ambassador@birthmark.org

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Olga Bachuk, Russia

I was born with Port Wine Stain in my face and now I try to help families with children affected by vascular birthmarks and syndromes.
My support groups consist of a social network of over 5,000 members.
In 2010, I wrote a message to Linda Rozell-Shannon and she suggested that I become the VBF Representative in Russia! I’m so proud to be a part of VBF and to make a difference!

Patrick Rose, United States (US), Massachusetts

Hello VBF! My name is Patrick Rose. I am 26 years old with a port-wine stain birthmark and SWS. My port wine stain has required 27 laser surgeries, the last one being when I was 12 years old. I was also born with glaucoma and SWS leaving me legally blind in both eyes. I joined this group through recommendation from a friend of mine who some of you may know, Scott Cupples. As a child I was bullied and very self-conscious of my birthmark. At the age of 15 I discovered a passion for fitness and haven’t looked back since. Fitness is what helped me gain the self-confidence to embrace my birthmark. To stand out, to look different from others is a gift. It makes us unique. There are still times where I get self-conscious but I’ve grown to realize, that WE are our own worst critics. Everyone has things that they don’t like about themselves. I am also a bodybuilder, personal trainer and fitness enthusiast in my free time. I encourage all of you to find your passion and embrace it!

Sarah Outram, Canada

Hello All! Like many of you, I was born with a port-wine stain birthmark on my face and neck – but that does not define me, just as one difference you have from others does not define you. I have worn makeup, had laser surgeries, been mocked and been loved.

When I was born, the doctor told my mother I had Sturge Weber Syndrome, and would not live past the age of three. Well, I am now 26 and plan to use my time in the best ways I can. Wishing you well!

Shae Freeman, United States (US), Arizona

My 16 year old son DeVion was born with Klippel Trenaunay Syndrome to his upper body. His younger years were full of constant hospitalizatikns and surgeries, amputations, blood transfusions, ect. We have been blessed in the past with help through the VBF and have continuously helped others as well in our journey!

Stacy Celestin, United States (US), Florida

Hi my name is Stacy and I am 32 years old and lived with port wine stain my entire life. I suffer from earlier morning flare ups and emotional swelling, unaligned spaced out teeth, bad gums on my right side. After entering the adult world I learned to embrace who I am and love the skin that I am in. Kids would make fun of me I’d shy away from the world to avoid anyone noticing that my face was not aligned or swollen on certain days. Today my goal is to reach out to every person who has PWS and tell them how beautiful they are inside and out. Nothing more matters then what is on the inside.

Taylor Hoover, United States (US), Nebraska

Colson is 11 months old with a PWS that covers his face, as well as the whole left side of his body, down to his toes! He has been diagnosed with Sturge Weber Syndrome and Klippel Trenaunay Syndrome. After he was born, we left the hospital knowing little to nothing , other than he had a birthmark. When he was hospitalized at just six weeks old, we then started getting the answers we needed. Almost one year later, multiple seizures, one surgery, one procedure, several medications, Neurologists, Dermatologists, Ophthalmologists, Physical Therapy, Occupational Therapy, ENT, and Genetics, and we are on our way to creating the best possible outcome of life we can provide for him! . Everyday is living in the unknown, but everyday I am thankful for our journey thus far. He is an absolute blessing and the strongest person I know. He is my HERO!