What Our Community is Saying: VBF Provides Life-Changing Resources for Patients and Families Affected by a Vascular Birthmark, Anomaly, and/or Related Syndrome (VBARS)
Lorraine Patton, Texas, was born with a Port-Wine Stain (PWS) birthmark on the left side of her face. It covers her neck, cheek, and most of her head. Her first experience with the Vascular Birthmarks Foundation (VBF) was in Houston in January 2023.
“I had the privilege of meeting Scott Cupples, Chief Operating Officer of the VBF and I received a free session of laser treatment on my birthmark from Paul M. Friedman, M.D.,” said Lorraine.
Since attending the clinic in Houston, Lorraine has become a VBF Global Ambassador and has attended virtual meetings led by Linda Rozell-Shannon, Ph.D., President and Founder of the VBF. In September 2023, Lorraine also attended VBF’s newly launched Adults Living With… Advocacy Network (ALWAN), which she described as an inspirational meeting.
“It helped me to understand how VBF has been a positive and truly life-changing experience for me,” said Lorraine. “The VBF has empowered me to speak openly and share my experiences about living with a vascular birthmark.”
Lorraine explains that VBF has provided her with a strong support network of people that understand her and has given her a sense of purpose.
“I now confidently identify as a person living with a Port-Wine Stain birthmark,” said Lorraine, who is looking forward to continuing her journey with the VBF and contributing to the growth of others through her work as a VBF Global Ambassador.